I have wanted to write a post on this topic for some time now and have put it off for a variety of reasons. Will I offend someone? What if words are taken out of context? Yada Yada. But you know what? This is my space, and it's being written. So here it goes...
A few weeks prior to my level II ultrasound I was fiddling around with some new apps for my iPhone. One I came across was BabyBump, much similar to Circle of Moms and The Bump. I have been receiving weekly updates, etc. What I became drawn to were the message boards, specifically the Tests and Checkups and the High Risk Prengancy forums.
It became clear that many mommies to be in the Testing forum are nagged with worries about the "statistics" regarding their little babies.
Certainly one's personality and possibly her belief system play a role in deciding how much prenatal testing to undergo.
For the most part, I can be laid back. I was young, 27, when I was pregnant with Peanut. Because of our belief system, coupled with not wanting to do any unncessary worrying, we chose not to have prenatal testing, including the early screenings, other than ultrasounds. Guess what? I had a stress free pregnancy. It was great (minus the horrid morning sickness).
Other mommies to be couldn't/wouldn't want to take the avenue that we chose. I respect that. To each his own.
Fear is the hidden monster that consumes our thoughts when things *might not go as planned*. Did I ask God to give me a child with special needs? Nope. Did I ever in a million years think I "could handle" having Cameran prior to her birth? Nope.
Guess what? He did and I am.
90% of children like Cameran are aborted usually due to a "possibility" of Down syndrome. Some of these babies would have had Ds and others would have turned out perfectly fine.
Of course the majority of doctors have limited experience dealing with Ds and wind up giving outdated information which winds up scaring new mommies.
So here is where I get a little baffled...
Statistically speaking, chances for having one's child be diagnosed with autism (found here) are higher than most any mommy-to- be's, regardless of age, chances of having a baby born with a chromosomal abnormality. Yet, we still get pregnant every. day.
100% of children with autism are here, and 100% of mommies have to deal with their diagnosis. No prenatal chances, odds, or confirmations help these mommies decide what to do prior to birth.
So what makes the fear of Down syndrome and other trisomies greater than the fear of a possible diagnosis of autism after a child has been born?
Saturday, April 30, 2011
Thursday, April 28, 2011
The Big 3-0
I can say that I haven't necessarily been dreading this particular birthday, but it would be nice to go out for a celebratory beverage as I enter the second third of my life. Thanks a lot Baby G#2.
To celebrate, my fabulous coworkers decorated my room and gave me items in quantities of 30 which led up to lunchtime when the 30s theme was all-out craziness and full of inside joke gifts that would make your mama blush.
At home Cameran and I relaxed while waiting for Daddy to get home. He came home bearing gifts. A new iPhone 4 (the new white color to be exact) and a cute coffee mug. Apparently jewelry was in the running, but I must've unknowingly been talking a lot about my phone crapping out lately so the ole iPhone has been retired and alas I have a new phone on which to check Facebook and play Words with Friends ;)
Ryan took Cami to Olive Garden to pick up dinner which gave me about 45 minutes of solitude. It was nice and relaxing. All in all, a nice low-key birthday. Saturday we have a sitter for Cameran and will be going out and about then to continue this newly foreign decade :)
I will end with some pictures.
To celebrate, my fabulous coworkers decorated my room and gave me items in quantities of 30 which led up to lunchtime when the 30s theme was all-out craziness and full of inside joke gifts that would make your mama blush.
At home Cameran and I relaxed while waiting for Daddy to get home. He came home bearing gifts. A new iPhone 4 (the new white color to be exact) and a cute coffee mug. Apparently jewelry was in the running, but I must've unknowingly been talking a lot about my phone crapping out lately so the ole iPhone has been retired and alas I have a new phone on which to check Facebook and play Words with Friends ;)
Ryan took Cami to Olive Garden to pick up dinner which gave me about 45 minutes of solitude. It was nice and relaxing. All in all, a nice low-key birthday. Saturday we have a sitter for Cameran and will be going out and about then to continue this newly foreign decade :)
I will end with some pictures.
Wednesday, April 20, 2011
Undeniable.
Baby G # 2 definitely has...
------------------------------------------------------------------------->
And as for trying a third time, I am pretty sure Ry's ready to cut his losses, because, as he puts it, his luck isn't that great and he would wind up with three girls ;)
She even showed off her potential at yoga and pilates...
So here's to Baby GIRL G. We love you and are glad you are looking healthy.
------------------------------------------------------------------------->
It's 100% undeniable now. Unfortunately for hubster my one smartass colleague says, and I quote, "It takes a real man to put a stem on it", so sorry Ryan, you are 0 for 2. It's okay though, you can be the King of the Castle surrounded by your Queen and two royal Princesses.
And as for trying a third time, I am pretty sure Ry's ready to cut his losses, because, as he puts it, his luck isn't that great and he would wind up with three girls ;)
It's all good though, because this ultrasound was awesome. My anxieties were squelched pretty early on as the technician talked her way through each shot and body part, explaining what she was looking for. She took no less than three pictures of each vital part to ensure proper measurements, and took a buttload of cardio pictures so that we could avoid a fetal ECHO. Ryan and I showed pictures of Cameran, and we talked a lot about her pregnancy and finding out about her T21 diagnosis after her birth.
Baby G was on the go the entire time, which worked out well for most of the shots that were needed. Apparently her favorite spot is my lower left pelvic region, which could explain a lot of my earlier back pain. Thanks a lot kid. In the end, the perinatologist came in and told us that she looks great, and does not have even one of the seven soft markers for BDs. What a sigh of relief. Although they could not give us ratio stats, our percentage is now <1% for Ds in Baby G #2. I am not so far out there as to think something could not still be wrong; obviously Cameran sailed through ultrasounds with flying colors, but for now I can enjoy 20 more weeks of not carrying laundry down stairs flips, kicks, and hiccups.
Here are some highlights from the session:
She mooned us almost immediately...
She even showed off her potential at yoga and pilates...
So here's to Baby GIRL G. We love you and are glad you are looking healthy.
Sunday, April 17, 2011
The Verdict is In...
Where are we going in this cold, nasty wind and rain?? |
You mean I get to find out if Baby G is a boy or a girl? Alright! I'm in! |
Mommy and me posing for Daddy in the waiting room. |
Sheesh Mommy, everyone keeps saying you've "popped" this week. That or you ate WAYYYYY too much. |
This little baby was one big wiggleworm, but not in a helpful way. Feet crossed up top, in between the carrots is the answer... |
Here I am. |
????? |
Saturday, April 16, 2011
Catching Up
Since the transplant there have been many topics I've wanted to blog about, but haven't gotten around to posting. I don't know if it is my procrastination or the fact that I want to have the idea solidified in my mind before keystrokes begin.
In any case, this is more of a stream of conscious catch-up of the first two weeks of April.
My mom's kidney is functioning well. Her recovery is slow, and she is still weaker than pre-surgery, but is continuing to recover.
Cameran is now a full-fledged "walker". Sure it looks a little sketchy, but I would say by the end of the first week of April she became consistently determined to walk. She has perfected crawling, in true Cameran fashion, waiting until she could do it proficiently before showing off. No army crawl for this girl. It's the real deal. When she stands and wants to turn it is hilarious because it is like she is doing the one-footed pivot until she completes a circle and gets turned to where she wants to go.
She even did some great walking with her Special Instructor earlier this week...outside...on grass...on an incline!!
Around the same time the walking began her first bottom front tooth began its emergence into the light. Two little ridges now poke through. Slow and steady. The 2 1/2 toothed 24 month old.
I need to post separately about going to Princesses on Ice. We went with some friends on April 2nd. Girlfriend LOVED the show, and even stayed awake until the last princess at 8:45!
Driving to Hershey.
Did I mention she sat in her own seat, courtesy of my friend Heather and my knees holding her seat down since apparently 21 lbs isn't enough weight to do the trick and she folded up in the seat at first!
Last weekend was Ds PlayPals. Many of our friends were off at CHOP for a Ds conference, but we had fun with two other little friends and even made a field of Easter bunnies during craft time!
ENT appointment yesterday was uneventful. Cameran was given ear drops to decrease the swelling in the ear that has been persistently bothering her.
Why does she look so grown up?
Hubby passed his Master's Competency Test! Graduation is set for May 21, and his parents are planning to fly in for the ceremony. I am so proud of him (even if I did have to slave awaywriting proof-reading his papers.)
On a whim last night I decided to call a local ultrasound center to get this baby's gender figured out. I keep thinking that although Wednesday is only five days away, it will be nice to know the gender prior to a Level II ultrasound appointment where they are going to be more concerned with looking for abnormalities than finding out the gender. I am more than a little scared for what Wednesday will bring being that it is really the only glimmer of our odds of knowing whether this baby is totally healthy or also has a little something extra. Either way, ultimately we are still blessed considering we are going to have not one, but two children after being told not a chance...So...here's to hoping for good health and a typical sibling for Cameran to emulate as she grows up. (And yes, there is a gender preference, but I am not even going there being that the first time around I said I just didn't want an ugly baby. Wish granted with an extra helping of genetic make-up ;)
She is pretty darn cute...
Even when posing as a disgruntled librarian...
I will leave you with Cameran's favorite new face...
In any case, this is more of a stream of conscious catch-up of the first two weeks of April.
My mom's kidney is functioning well. Her recovery is slow, and she is still weaker than pre-surgery, but is continuing to recover.
Cameran is now a full-fledged "walker". Sure it looks a little sketchy, but I would say by the end of the first week of April she became consistently determined to walk. She has perfected crawling, in true Cameran fashion, waiting until she could do it proficiently before showing off. No army crawl for this girl. It's the real deal. When she stands and wants to turn it is hilarious because it is like she is doing the one-footed pivot until she completes a circle and gets turned to where she wants to go.
She even did some great walking with her Special Instructor earlier this week...outside...on grass...on an incline!!
Around the same time the walking began her first bottom front tooth began its emergence into the light. Two little ridges now poke through. Slow and steady. The 2 1/2 toothed 24 month old.
I need to post separately about going to Princesses on Ice. We went with some friends on April 2nd. Girlfriend LOVED the show, and even stayed awake until the last princess at 8:45!
Driving to Hershey.
Did I mention she sat in her own seat, courtesy of my friend Heather and my knees holding her seat down since apparently 21 lbs isn't enough weight to do the trick and she folded up in the seat at first!
Last weekend was Ds PlayPals. Many of our friends were off at CHOP for a Ds conference, but we had fun with two other little friends and even made a field of Easter bunnies during craft time!
ENT appointment yesterday was uneventful. Cameran was given ear drops to decrease the swelling in the ear that has been persistently bothering her.
Why does she look so grown up?
Hubby passed his Master's Competency Test! Graduation is set for May 21, and his parents are planning to fly in for the ceremony. I am so proud of him (even if I did have to slave away
On a whim last night I decided to call a local ultrasound center to get this baby's gender figured out. I keep thinking that although Wednesday is only five days away, it will be nice to know the gender prior to a Level II ultrasound appointment where they are going to be more concerned with looking for abnormalities than finding out the gender. I am more than a little scared for what Wednesday will bring being that it is really the only glimmer of our odds of knowing whether this baby is totally healthy or also has a little something extra. Either way, ultimately we are still blessed considering we are going to have not one, but two children after being told not a chance...So...here's to hoping for good health and a typical sibling for Cameran to emulate as she grows up. (And yes, there is a gender preference, but I am not even going there being that the first time around I said I just didn't want an ugly baby. Wish granted with an extra helping of genetic make-up ;)
She is pretty darn cute...
Even when posing as a disgruntled librarian...
I will leave you with Cameran's favorite new face...
Saturday, April 2, 2011
Before and After
Well, today marks four days post-op for my mom and her donor.
This is what they removed...
This is what they removed...
Yes, that's right. That is my mom's kidney--filled with nasty cysts, hence the term POLYcystic Kidney Disease. It measured a little over 10 inches in length (that is a 5 inch surgical ruler) and weighed between 5-6 POUNDS.
This is what it was replaced with....
Isn't it beautiful?? The prettiest 5 ounce normal kidney I have ever seen. We are eternally grateful to Bettyann.
I promised I wouldn't post any hospital pictures, so I will stick to that. If I could, I would've taken and posted a picture of Mom's catheter filled with the most gorgeous urine I have ever seen. New kidney began working immediately!
Now Mom is battling nausea from what we assume is a shock to her system since she is on super high doses of anti-rejection drugs, steroids, and others as well.
We were hoping she would be released today (Happy Birthday, Mom), but tomorrow is looking more probable.
Here is a link to the most recent news article that was published about the surgery. There were a few misprints, but overall this one contains relevant facts about PKD, organ donation, and living donorship.
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