tag:blogger.com,1999:blog-35687046418301368462024-02-20T01:42:58.157-05:00Loving Peanut & PetrieOur family has grown by one! Introducing Payton Lana, aka Petrie...Follow us as we journey through life with a lil something extra!Jenhttp://www.blogger.com/profile/07854458341391943756noreply@blogger.comBlogger132125tag:blogger.com,1999:blog-3568704641830136846.post-82134847784209260062011-10-15T17:01:00.000-04:002011-10-15T17:01:29.022-04:00It's been a while......but we are still here, plus one!<br />
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Payton Lana was born September 6th at 1:46 pm weighing in at 7 lbs 6 1/2 oz and 18 1/2 inches tall having <strike>only</strike> 46 chromosomes.<br />
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We will pretend Cameran's excitement level was somewhere around this...<br />
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This is about as close as she gets--unless she is blanket, nuk, or bottle thievin', which of course, then it is completely okay to touch baby sister.<br />
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Did I mention we moved the week after I got out of the hospital? <br />
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I do not recommend it. Ever. Even on my worst enemy. It was c.r.a.z.y. But now we are settled (mostly). <br />
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And I go back to work Monday.<br />
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:(Jenhttp://www.blogger.com/profile/07854458341391943756noreply@blogger.com11tag:blogger.com,1999:blog-3568704641830136846.post-91292603509962860512011-08-30T21:07:00.000-04:002011-08-30T21:07:02.386-04:00It's Been a Long TimeLet's just say that the rest of post-Illinois summer was anything but relaxing. In the month that I have failed to blog we: <br />
-wrapped up our 2 1/2 week stay with Ryan's family, <br />
-sold our house in less than two weeks (while we were in Illinois)--which led to many document scans and emails to get the ball rolling,<br />
-looked at many houses in search of the one,<br />
-found the one and went through a rollercoaster or ups and downs to get it,<br />
-survived Hurricane Irene, but not without a good basement flooding,<br />
-started back to work,<br />
-packed our hospital bag for Baby G #2 who is set to arrive no later than 9/9/11<br />
-are packing our house<br />
-have two different settlement dates-tentatively-that will allow us to take things to our new home in smaller loads<br />
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S-T-R-E-S-S!!!!!!!!!!!!!!!!!!!! AHHHHHHHHHHHHHHHHHHHHH.<br />
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I think I can. I think I can.<br />
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The only part of this that was "planned" well is the recovering from childbirth part that will allow me to get out of heavy lifting. I shall be the task master. And proud of it.<br />
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Here's to hoping Cameran adjusts well to her new role as big sister.<br />
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<tr><td class="tr-caption" style="text-align: center;">38 weeks; August 26th</td></tr>
</tbody></table> Random Cuteness<br />
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Jenhttp://www.blogger.com/profile/07854458341391943756noreply@blogger.com3tag:blogger.com,1999:blog-3568704641830136846.post-47044600871061461822011-07-20T15:08:00.000-04:002011-07-20T15:08:53.686-04:00Almost Wordless Wednesday (from Illinois)Schwetting quite a lot out here in yonder corn country. I swear the cornfields trap the humidity thus making Pennsylvania feel cool by comparison.<br />
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Thank goodness for 24/7 pool access.<br />
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Anyway, we are enjoying our time relaxing here with Ryan's family. Cameran is enjoying Grandma and Papa and all of her cousins. She has decided to self-feed graham crackers (evidence below) and is continuing to improve in picking up her sippy cup and has returned to signing "food" and "more" after a monthlong hiatus.<br />
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Enjoy.<br />
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<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhvMvfEz-8_xqIuOzW7NXpQ9qrUDzBL6o7Q2TYvDPmS95M3CjBkCb_DILJgJchkzM6IAk2RC_VHQhYmSelY_2ew8YgNQpx-gnKDLOgj8rZUuQ3Tfisej6ATAyEYljes8UT5_AyCLz2Vds8/s1600/Il12.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhvMvfEz-8_xqIuOzW7NXpQ9qrUDzBL6o7Q2TYvDPmS95M3CjBkCb_DILJgJchkzM6IAk2RC_VHQhYmSelY_2ew8YgNQpx-gnKDLOgj8rZUuQ3Tfisej6ATAyEYljes8UT5_AyCLz2Vds8/s320/Il12.JPG" width="239" /></a></div>Jenhttp://www.blogger.com/profile/07854458341391943756noreply@blogger.com2tag:blogger.com,1999:blog-3568704641830136846.post-63918717543922435762011-07-05T12:27:00.001-04:002011-07-05T12:29:25.687-04:00Fourth of July WeekendSummertime has helped Cameran find her free spirit and love of water. She has turned into quite the little AquaBaby lately, and even enjoys her showers and baths.<br />
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Here is a little teaser from Sunday.<br />
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<iframe width="425" height="349" src="http://www.youtube.com/embed/uUejx04K-Uc" frameborder="0" allowfullscreen></iframe><br />
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<iframe width="425" height="349" src="http://www.youtube.com/embed/FCYuQnUXSD4" frameborder="0" allowfullscreen></iframe><br />
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More to come...Jenhttp://www.blogger.com/profile/07854458341391943756noreply@blogger.com2tag:blogger.com,1999:blog-3568704641830136846.post-54289657806581428572011-06-25T20:55:00.000-04:002011-06-25T20:55:23.189-04:00Splish Splash SlurpToday Cameran and I (with Nanny's help) hosted a Thirty-One Gifts party. If you have not heard of these products might I suggest heading <a href="http://www.thirtyonegifts.com/">here</a> and checking them out.<br />
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In any case, we had a good time talking, eating, deciding what to buy, and watching a bunch of little girls crawl, walk, and twirl around the room.<br />
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Afterwards, my friend H and her little girl M stayed a little while longer to hang out and take a swim in the kiddie pool. The hopscotch sprinkler (Kohl's) was a big hit with M as well. Even more impressive was the longevity in which Cameran tolerated the pool. Usually she is good to go for about five minutes in a kiddie pool and then wants OUT! Not today. Miss Peanut splished and splashed and interacted with some water toys!!! She stood, stooped, sat, clapped, laughed and not once did she cry. It was fantastic. <br />
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Here are two little clips of my waterbaby. (Don't mind the lovely adult conversation in the background regarding recent pet deaths and such. In fact, you can probably live without the sound for at least the first...)<br />
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<iframe allowfullscreen="" frameborder="0" height="349" src="http://www.youtube.com/embed/LdUeLzQLNYU" width="425"></iframe><br />
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<iframe allowfullscreen="" frameborder="0" height="349" src="http://www.youtube.com/embed/wD0Ibby3oX4" width="425"></iframe><br />
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I am fortunate enough to still have three out of four living grandparents of my own, and that lovely arm and half-a side profile was Great Granny's internet debut ;)<br />
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In other news, Cameran still gives kisses on demand. If ever you have cotton-mouth Cameran will be there to lend a helping hand, err slobby mouth...<br />
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<iframe allowfullscreen="" frameborder="0" height="349" src="http://www.youtube.com/embed/TUxAKc-KAA4" width="425"></iframe><br />
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And finally we end the evening with some girly pics of Cameran being a goofball. <br />
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjwOJGxEnoUxZn-zX-mz6L3wf0BR2tQRxkkeaVBg4btwOuBCu9tEbPHtpdXpzFAmQqwM0q7tECjLQUUo1n92dWZVsdjuHKvUk09zKm37L9jgS0ZSJfN_AYYM030mfoOxa2cxTouzvKp4HQ/s1600/35.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjwOJGxEnoUxZn-zX-mz6L3wf0BR2tQRxkkeaVBg4btwOuBCu9tEbPHtpdXpzFAmQqwM0q7tECjLQUUo1n92dWZVsdjuHKvUk09zKm37L9jgS0ZSJfN_AYYM030mfoOxa2cxTouzvKp4HQ/s320/35.JPG" width="239" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Just takin a rest.</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgFDCZ1l0hULdyjbKYTwPuIhLwzRunwfiMmxjUxIRJXgVFiPy3qpAlkxO-cpQSVbY5RMVV8aCwK-4YMPZErPifSQXagxX6-Oqgf2Ntjk4QG7wL5229bpZ0AkUdyIbTtTOuXUEFZux4-yys/s1600/36.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgFDCZ1l0hULdyjbKYTwPuIhLwzRunwfiMmxjUxIRJXgVFiPy3qpAlkxO-cpQSVbY5RMVV8aCwK-4YMPZErPifSQXagxX6-Oqgf2Ntjk4QG7wL5229bpZ0AkUdyIbTtTOuXUEFZux4-yys/s320/36.JPG" width="239" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Those are ice cream eyes...</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjCuXcFcUlDcFhR4AGf0xalbGeSc92y4Dc3wfpiEE-ADzGLydNnizYjS4oFeUTJuGXu613zL3Oroncp-sXSZgRgRZnTjaZn4Q6JodpXSVDodnBbzSw4v55FplYUgjdUy0UzhnRB352AM3U/s1600/37.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjCuXcFcUlDcFhR4AGf0xalbGeSc92y4Dc3wfpiEE-ADzGLydNnizYjS4oFeUTJuGXu613zL3Oroncp-sXSZgRgRZnTjaZn4Q6JodpXSVDodnBbzSw4v55FplYUgjdUy0UzhnRB352AM3U/s320/37.JPG" width="239" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Yes, she chases her shadow.</td></tr>
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<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgkEWN4Hq2w7COrYPkO9qkQfGE5YKCvIMhEUfSyc8VH5OE4uqtNCLQDMuHtRC4I_i0hNjAJFrRO6gpp69s_YpaesAYUK2d_Ku_0K80hLFHQ8ZWOck9_z7qUvLqjPHx4S5xUPtUKEZpRJSI/s1600/38.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgkEWN4Hq2w7COrYPkO9qkQfGE5YKCvIMhEUfSyc8VH5OE4uqtNCLQDMuHtRC4I_i0hNjAJFrRO6gpp69s_YpaesAYUK2d_Ku_0K80hLFHQ8ZWOck9_z7qUvLqjPHx4S5xUPtUKEZpRJSI/s320/38.JPG" width="239" /></a></div><br />
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjfzGWCQASCS8nSj-_kGMMFdwgnpKGr7T-_9b_9yZ7VVQlPW-j-EwSU5tvV31E0PLT1ElV9kqgY4g7UF925_nDWbzTFNBto_g-5e9XKVnPtbmxMz6BJXYOpl4gQsDVx6DVzvCHsKyo3EnY/s1600/39.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjfzGWCQASCS8nSj-_kGMMFdwgnpKGr7T-_9b_9yZ7VVQlPW-j-EwSU5tvV31E0PLT1ElV9kqgY4g7UF925_nDWbzTFNBto_g-5e9XKVnPtbmxMz6BJXYOpl4gQsDVx6DVzvCHsKyo3EnY/s320/39.JPG" width="239" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Gotta love the bottom bulldog tooth.</td></tr>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgxg3IudwI8P2HVgci3sFqUGucoQGoU5i-vd00U7yDp0CWMqdjslLKK6MkR9HtVA0Y_uyx-ntAAT7ym-zkwfyI7jr6AG2avdYxvHnL4199kpGYhpUntPu5tzGtVzYDW7H60q0c_GZM67e4/s1600/40.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgxg3IudwI8P2HVgci3sFqUGucoQGoU5i-vd00U7yDp0CWMqdjslLKK6MkR9HtVA0Y_uyx-ntAAT7ym-zkwfyI7jr6AG2avdYxvHnL4199kpGYhpUntPu5tzGtVzYDW7H60q0c_GZM67e4/s320/40.JPG" width="239" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Clapping, a national pasttime.</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg2VI6vN9xYkNZROyl8txY8dubZSxRPP87XQq8Agv1_y3zkb9kwIAjG-JJLjlCZXfqMs0hkd_4nwM-B7RfjR4qVx3Ypuou9A_DDGIxdDe8vjYnfD-LUCJQF4LPQ0af3SWMYVkZ92Kflt0w/s1600/41.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg2VI6vN9xYkNZROyl8txY8dubZSxRPP87XQq8Agv1_y3zkb9kwIAjG-JJLjlCZXfqMs0hkd_4nwM-B7RfjR4qVx3Ypuou9A_DDGIxdDe8vjYnfD-LUCJQF4LPQ0af3SWMYVkZ92Kflt0w/s320/41.JPG" width="239" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">What?! Bedtime is after this??</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhfKgPU5aefKjY5PZnhle-9fTXK-5zXe3fnQ26OILijKQSnbFu4LWRYk9YZHvMSjADyMMPnFkatQjASEhkHnZ5Bf-6o_XYKjn9REb999CaFM4MyWDtkKUcLktmpgcFRuSK9UzjpHn77aa8/s1600/42.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhfKgPU5aefKjY5PZnhle-9fTXK-5zXe3fnQ26OILijKQSnbFu4LWRYk9YZHvMSjADyMMPnFkatQjASEhkHnZ5Bf-6o_XYKjn9REb999CaFM4MyWDtkKUcLktmpgcFRuSK9UzjpHn77aa8/s320/42.JPG" width="239" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Okay, we had fun today. G'night!</td></tr>
</tbody></table>Jenhttp://www.blogger.com/profile/07854458341391943756noreply@blogger.com0tag:blogger.com,1999:blog-3568704641830136846.post-57813955240656954702011-06-24T20:57:00.014-04:002011-06-24T21:05:28.683-04:00Peek-a-boo and some Dancy-Dance TimeFirst of all, we have to have the most UNCOOPERATIVE child in utero E.V.E.R. Signs to come??? Sigh.<br />
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We went back over the river today to get our follow-up from what we thought were last week's not-so-good 3D ultrasound pictures. Who knew that last week's pictures would turn out WAYY more fabulously than today's pictures. Baby G#2 did move, and is no longer transverse; unfortunately, she decided that head-down and looking at my spinal column while smooshing into some placental pillow was a way more convenient position. To the sonographer's credit, she turned a 20-30 minute session into almost an hour trying to get this little bugger to budge. We got her hand to move and that was about it. We twisted, turned, contorted, folded in half, took pee breaks, but to no avail. She felt so terrible that we left with a complimentary baby hat AND baby blanket as well as a compilation of all three visit's pictures AND videos. And poor Ryan... he learned all about female anatomy today, and also that there is NOWAY this kid is a boy. That small sliver of hope is gone. Ain't happenin'. The dream has died.<br />
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In any case, here is a set of last week's pictures in color, followed by today's "best shots"...Lots of shadowing. If there is one noticeable feature it would be that this kid's rockin' some massive chunk-o-cheeks.<br />
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<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiitHv3RN0zP9kbgFdKkMvKggbA9prT3q9Lv1xBupw931xR4zm9vOC2RPW7UBSj4s9F_upqfWBOVL1Tph-EpL7BN6avLq1YJGxWxi_OCo6LLVtdoLwGNIfNCNLfhy6-9Yi44k7dBwafj0s/s1600/33.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiitHv3RN0zP9kbgFdKkMvKggbA9prT3q9Lv1xBupw931xR4zm9vOC2RPW7UBSj4s9F_upqfWBOVL1Tph-EpL7BN6avLq1YJGxWxi_OCo6LLVtdoLwGNIfNCNLfhy6-9Yi44k7dBwafj0s/s320/33.JPG" width="239" /></a></div><br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhXpTWMB4RfBHjwpWOVP-7FrAWRAnXu_8vRoI9f5gfJPI8_T57-9n2233lgPfzSpivgbJzyCk06G4MLS5W8JSwBj7ZWxLYLSQuWash7QjYeCNU_R0omwE9sDmsi_MPFZvaVCRdWDrnTqWw/s1600/34.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhXpTWMB4RfBHjwpWOVP-7FrAWRAnXu_8vRoI9f5gfJPI8_T57-9n2233lgPfzSpivgbJzyCk06G4MLS5W8JSwBj7ZWxLYLSQuWash7QjYeCNU_R0omwE9sDmsi_MPFZvaVCRdWDrnTqWw/s320/34.JPG" width="239" /></a></div><div align="left" class="separator" style="clear: both; text-align: center;"></div>Massive cheeks. Oh, and a squished nose. (Apparently it's all smooshed in the placenta.)<br />
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*************** <br />
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In other news, Cameran's personality is quite comical as of late. She gives kisses on demand, waves at approprate times, and is quite the little ballerina. Girl's got rhythm. Usually when I try to take pictures or shoot video she shies away, but tonight we was pretty darn funny...<br />
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Cameran <strike>saying hi to baby </strike>beating the crap outta Mommy.<br />
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<iframe allowfullscreen="" frameborder="0" height="349" src="http://www.youtube.com/embed/Rl4iL5PcknU" width="425"></iframe><br />
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Cameran dancing, patting, and kissing.<br />
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Cameran <strike>patting</strike> beating, kissing, slobbing, dancing and jabbering.<br />
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<iframe allowfullscreen="" frameborder="0" height="349" src="http://www.youtube.com/embed/8bhASK0PFm4" width="425"></iframe><br />
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Three randoms of Daddy singing, making funny faces, and receiving slobbery kisses from Cameran.<br />
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<iframe allowfullscreen="" frameborder="0" height="349" src="http://www.youtube.com/embed/2Dw3X0xflyU" width="425"></iframe><br />
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<iframe allowfullscreen="" frameborder="0" height="349" src="http://www.youtube.com/embed/-jxCKN6WxlU" width="425"></iframe><br />
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<em><span style="font-size: x-small;">Disclaimer: Cameran's horrid outfit combination is a result of her being way too interested in her new Jessie pjs and me being too lazy to remove her pants.</span></em><br />
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<strong>Thank you to those of you who have "come out of hiding" (see previous post)...Still looking for lurkers to come forward and say hello. Feel free to "Follow" our journey, which is also how I find a lot of the blogs I follow as well ;)</strong><br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgi5z3CTU9U93O5Aee3W4tBRBqRM9IUk3-4iA2S6zTRidKovNa36zlZ3NaO0K_CLYM7UywAX0Tfw1Jpa8W7FanJlAYsaR-XF882a3FL78J_N89k66z-MR9LZD0jzAB56x0ms4GfRmhCXxA/s1600/Alice_Wonderland_Who_Are_You_Black_Shirt.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgi5z3CTU9U93O5Aee3W4tBRBqRM9IUk3-4iA2S6zTRidKovNa36zlZ3NaO0K_CLYM7UywAX0Tfw1Jpa8W7FanJlAYsaR-XF882a3FL78J_N89k66z-MR9LZD0jzAB56x0ms4GfRmhCXxA/s320/Alice_Wonderland_Who_Are_You_Black_Shirt.jpg" width="320" /></a></div>Jenhttp://www.blogger.com/profile/07854458341391943756noreply@blogger.com0tag:blogger.com,1999:blog-3568704641830136846.post-84710679605421568662011-06-23T10:11:00.000-04:002011-06-23T10:11:12.548-04:00Who Are You?<div style="text-align: center;">No, really...</div><div style="text-align: center;"><br />
</div><div style="text-align: center;">Just like Blue Caterpillar asks Alice...</div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi5olq8KRu0qX8JXnpcQt05svjVUKr5GGenM2d6iCNy9z-6XZe-9fYKBf5jOCpRj7O0UH5kwr-QbSwTQm-WQWPmfFetu1E9GUk5N4Gxk2pFUf_IpTPilxhsNi0eQ12HogA20GTWqbN8onw/s1600/Alice_Wonderland_Who_Are_You_Black_Shirt.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi5olq8KRu0qX8JXnpcQt05svjVUKr5GGenM2d6iCNy9z-6XZe-9fYKBf5jOCpRj7O0UH5kwr-QbSwTQm-WQWPmfFetu1E9GUk5N4Gxk2pFUf_IpTPilxhsNi0eQ12HogA20GTWqbN8onw/s320/Alice_Wonderland_Who_Are_You_Black_Shirt.jpg" width="320" /></a></div><br />
<div align="center">It's not that I NEED to know, as much as a curiosity. Since adding a few page tabs at the top and the blog's web address to my signature on a few boards I am a part of I have seen "traffic" significantly increase from a month ago. <br />
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Which logically leads me to believe there are far more of you reading, whether you are a once-in-a-blue-moon reader, a semi-regular lurker, or an actual "follower"-Who are you? Do you have a connection to Down syndrome? Are you finding my from BBC or perhaps from another blog and find it easier to link from there than to "follow". Or maybe I am in your google reader, in which case, I have no idea.</div><div align="center"><br />
</div><div align="center">Come out, come out, wherever you are!!!</div><div align="center"></div>Jenhttp://www.blogger.com/profile/07854458341391943756noreply@blogger.com5tag:blogger.com,1999:blog-3568704641830136846.post-84462000208839928352011-06-21T20:13:00.001-04:002011-06-21T20:18:38.469-04:00Father/Daughter Dance Party...and this is why I love him...<br />
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Luckily for me he doesn't look at this blog to see that I am <strike>showing off</strike> exploiting his killer moves for the sake of personal entertainment. ;)<br />
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<iframe width="425" height="349" src="http://www.youtube.com/embed/V-WXFMMv1aQ" frameborder="0" allowfullscreen></iframe><br />
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<iframe width="425" height="349" src="http://www.youtube.com/embed/hWxUdqg_F78" frameborder="0" allowfullscreen></iframe><br />
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<iframe width="425" height="349" src="http://www.youtube.com/embed/tRLVK0H8paw" frameborder="0" allowfullscreen></iframe><br />
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<iframe width="425" height="349" src="http://www.youtube.com/embed/FK6ZNMwpcI4" frameborder="0" allowfullscreen></iframe><br />
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<iframe width="425" height="349" src="http://www.youtube.com/embed/H3duaZ1nDs4" frameborder="0" allowfullscreen></iframe>Jenhttp://www.blogger.com/profile/07854458341391943756noreply@blogger.com0tag:blogger.com,1999:blog-3568704641830136846.post-40592279776567529342011-06-20T16:55:00.000-04:002011-06-20T16:55:26.542-04:00Anniversary, Father's Day, and a little in Between<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEirzPDLUL-VEXh2YCvQ6574vH_N8T4V84n2eES2B8uvyKZHGyBMp0NP4plN97u57ekCR2tpgKXLeG0wSvLpDiFPDdWbwJLNNRBJgHXKHUetaz4Y3pRXSMEJVDdT0dPTHkK6Vh2AJFkfJJM/s1600/1.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEirzPDLUL-VEXh2YCvQ6574vH_N8T4V84n2eES2B8uvyKZHGyBMp0NP4plN97u57ekCR2tpgKXLeG0wSvLpDiFPDdWbwJLNNRBJgHXKHUetaz4Y3pRXSMEJVDdT0dPTHkK6Vh2AJFkfJJM/s320/1.JPG" width="239" /></a></div><a name='more'></a><span style="color: #7f6000;">Time flies...I have neglected poor bloggy long enough and have much to catch up on since hubby's graduation and the end of the school year. While the end of school is always a happy time, it was a bit bittersweet this year as my team watched two of our finest retire and one switch positions. Next school year will bring many changes, in the grand scheme of things, the least of which is staffing changes, since I will be at work (hopefully) barely long enough to learn a few names before popping out Gerber Baby #2. More on her later...</span><br />
<span style="color: #20124d;">Did I mention how wonderful my DH is? Cameran is so happy when she is playing with her Daddy. He is so hands-on and interactive. I couldn't have picked a better guy to marry. Which leads me to...</span><br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjQs0m3STcn3pDKoxl08CgnDSk9o3sSs-_iTSaacNsFs0qMno11B0ReEfW9hgHOu8PKnig7LfgVOP3936tJV81u91corfOhQTSEXVjgmXv9YrmYXMnh1GrYdgrkoiT2fPVMtcdBc7lLbn0/s1600/2.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjQs0m3STcn3pDKoxl08CgnDSk9o3sSs-_iTSaacNsFs0qMno11B0ReEfW9hgHOu8PKnig7LfgVOP3936tJV81u91corfOhQTSEXVjgmXv9YrmYXMnh1GrYdgrkoiT2fPVMtcdBc7lLbn0/s320/2.JPG" width="239" /></a></div><br />
<span style="color: #20124d;">Our 7th anniversary.</span> <br />
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<span style="color: #20124d;">It was pretty low-key this year. The stress of the end of the school year, coupled with DH's post-graduate certification issues and my pregnancy woes did not make for anything earth-shattering to write about, but this family breakfast was certainly picture-worthy.</span><br />
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<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhDwaqoazhH5qYAs6Njoj_bDTYfFdK6Y4Sa10F37SJCZ6LF3Xm3Gf-TjK0pEHDUoGAHa7eSqaxeUriKEPxYgmj7e7YlExzKfmqm2a8Yz2jU2_w9Srhvz3EwyCqmw2ATCxxbgklLoA-Emc8/s1600/13.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhDwaqoazhH5qYAs6Njoj_bDTYfFdK6Y4Sa10F37SJCZ6LF3Xm3Gf-TjK0pEHDUoGAHa7eSqaxeUriKEPxYgmj7e7YlExzKfmqm2a8Yz2jU2_w9Srhvz3EwyCqmw2ATCxxbgklLoA-Emc8/s320/13.JPG" width="239" /></a></div><span style="color: #20124d;">Cameran adores her Daddy. </span><br />
<span style="color: #20124d;">Here's to June 12th being a fabulous anniversary date, and looking forward to many more years together....</span><br />
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<span style="color: #e06666;">In other news, being to impulsive person I am, I decided that we needed to "see" the baby again. Over the river and down the highway we went back to Womb With a View for an upgrade of our original gender package. We walked away with these three photos...</span><br />
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<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgDlAGhHzFIjMkAm-31A9evKhsYUV0pqEr5t4zsBVVOZp85kaRdnmmHwigVFGNhUOntF-XEa0NlHIPpSUo7hjzC9Opq0XXf15VgeX38ZG4nWr9mvhLgFzpy0BO82qBN2ee4omNIhKEVjc8/s1600/16.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgDlAGhHzFIjMkAm-31A9evKhsYUV0pqEr5t4zsBVVOZp85kaRdnmmHwigVFGNhUOntF-XEa0NlHIPpSUo7hjzC9Opq0XXf15VgeX38ZG4nWr9mvhLgFzpy0BO82qBN2ee4omNIhKEVjc8/s320/16.JPG" width="239" /></a></div><span style="color: #e06666;">I am pretty sure little Miss Stubborn is smirking here. She was very smiley in utero and offered us a glimpse at the inside of her eyelids, none of which was captured via still photos, although we do have the CD-ROM...<br />
Did I mention only three photos? Apparently Mommy's severe back-stabbing, ribcage-ripping heartburn and round ligament woes are thanks to Gerber Baby #2's desire to contort herself not only in the transverse position, but also folded like a freaking pretzel. I kid you not, toes are next to ears. Thankfully as I type this I can only assumed she has snuggled up elsewhere, and we head back across the river again this Friday for round 2. Hopefully this time she cooperates and does not choose any of the aforementioned positions to get comfy in. (Baby G #2--if you are hearing these keystrokes--using the placenta as a pillow to shield your cute little face is also not advisable. We would like nice, clear images IN COLOR this time around. Thanks. Love, Mommy)</span><br />
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<span style="color: #351c75;">The next day it was off to a first birthday party for a dear friend's LO who turns 1 this month. Turns out this was quite the great-outdoor adventure. Cameran survived sans-nap, in grass, AND without freaking out when she was placed in a treeswing. Not only that but apparently she is a fan of Bouncy-Houses when they are not inhabited by rowdy boys ;)</span><br />
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<span style="color: #0b5394;">Father's Day. What can I say. Pappy is the best fahja in the world, Grizzly Adams look and all.</span><br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhe2uWRH4dmqSZweDUcCIVj5fjpWhKgP6vdRU_UBwXfYgZDNmu7Tucq6FHF8fxtsKxfPsmRbGojie2GpBUHnPKMlvJEbY5LUeJ8DvipYw3s8cPt-md6gr6dL0fc-OZdrdEJtszlpFBMZgQ/s1600/21.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhe2uWRH4dmqSZweDUcCIVj5fjpWhKgP6vdRU_UBwXfYgZDNmu7Tucq6FHF8fxtsKxfPsmRbGojie2GpBUHnPKMlvJEbY5LUeJ8DvipYw3s8cPt-md6gr6dL0fc-OZdrdEJtszlpFBMZgQ/s320/21.JPG" width="239" /></a></div><span style="color: #134f5c;">He is quite smitten with Miss Cameran, although she usually lunges for Nanny within minutes of being held. (He can be quite scary looking, especially during flannel-wearing, beard-growing huntin' season;)</span><br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj0lmEUw3GWEcrplqWdVeuFM394P1jQIsSfsZM6qKGCzrxd9fmNFNizrt0k_FUpvlMEBYz2TyXlO5bEVOfyRzfgYkU3QUNYVYtUFMlfQCNNzid0epcY_EqKhVMf3RNf2binEWs4GR8SrfU/s1600/22.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj0lmEUw3GWEcrplqWdVeuFM394P1jQIsSfsZM6qKGCzrxd9fmNFNizrt0k_FUpvlMEBYz2TyXlO5bEVOfyRzfgYkU3QUNYVYtUFMlfQCNNzid0epcY_EqKhVMf3RNf2binEWs4GR8SrfU/s320/22.JPG" width="239" /></a></div><span style="color: purple;">The night before official Father's Day we learned of Cameran's formerly hidden talent: Baby Whispering. When we dropped food off for some friends whose adorable baby boy is seen below, we wanted to see how Cameran would react to a newborn. Would she even care? <em>Not so much</em>. Would she be gentle? <em>Yes.</em> Would she tolerate crying? <em>With saucer-sized eyeballs, yes. </em>And then it happened...Baby N began cries of hunger, and Cameran became interested. Over she would go, Baby N would stare, and.....stop crying. Each. Time. I kid-you-not. </span><br />
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<span style="color: purple;">Cameran, when you are older and read this--know that one of your choices is a degree in early-childhood. <strong><em>Cameran Leah, Resident Baby Whisperer.</em></strong></span><br />
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<span style="color: #a64d79;">Last, but not least, Happy Father's Day to the main man in my life. You are a wonderful husband, an amazing father, and a hilarious friend. I can't wait to see what kind of crazy nicknames and songs you make up for Baby G #2.</span><br />
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<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjULmFXi-hcz8u3U-vtozfM9JqnMNIchFhofFSFFSazrnmNP6k-mhKHRAnVwygIX5M3PIS3u5TnbP0UO8TDDLxDGeTMBL5EH4AaY2R-vIXozsLwNRYutcdylsaBzGttNWEcoIMsex__uTY/s1600/32.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjULmFXi-hcz8u3U-vtozfM9JqnMNIchFhofFSFFSazrnmNP6k-mhKHRAnVwygIX5M3PIS3u5TnbP0UO8TDDLxDGeTMBL5EH4AaY2R-vIXozsLwNRYutcdylsaBzGttNWEcoIMsex__uTY/s320/32.JPG" width="239" /></a></div>Jenhttp://www.blogger.com/profile/07854458341391943756noreply@blogger.com0tag:blogger.com,1999:blog-3568704641830136846.post-21148203728510745512011-05-26T15:20:00.000-04:002011-05-26T15:20:49.858-04:00Graduation, Smiles, and SuchOn Saturday, May 21st, my dear husband completed his Master's Degree. Normally he is not one to seek out recognition, but this particular festivity warranted celebration. We discussed months ago whether or not he should "walk" at commencement. At first he was hesitant--did not want to at all. Then he slowly realized that yes, this is an accomplishment worth celebrating. I was proud that he was proud of himself. He also realized that if he decided to walk it would be the perfect excuse for his parents to come into town. And they did!<br />
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</div><div class="separator" style="clear: both; text-align: left;">It was a great day. The weather was beautiful, and the sun was shining after a week of rain and clouds. </div><div class="separator" style="clear: both; text-align: left;"><br />
</div><div class="separator" style="clear: both; text-align: left;">And of course we can't go without a few pictures of little Miss in her new outfit courtesy of Grandma...</div><div class="separator" style="clear: both; text-align: center;"><br />
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<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjYA51QWrQBfHu6-o6K1K-KKUxTvZJX9kOhLGzG43JsZPrk92XnGPMhazWBStm4f2o_pqlljNpxQr1m9kbd0g5rlkHyS8LZVfN5E4X0iNZLRLyGqWzftan76T6KxNLjAjoxacV9XEy3Ph0/s1600/12.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320px" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjYA51QWrQBfHu6-o6K1K-KKUxTvZJX9kOhLGzG43JsZPrk92XnGPMhazWBStm4f2o_pqlljNpxQr1m9kbd0g5rlkHyS8LZVfN5E4X0iNZLRLyGqWzftan76T6KxNLjAjoxacV9XEy3Ph0/s320/12.JPG" t8="true" width="239px" /></a></div><div style="text-align: left;"></div>Jenhttp://www.blogger.com/profile/07854458341391943756noreply@blogger.com2tag:blogger.com,1999:blog-3568704641830136846.post-60568963216162742102011-05-19T14:59:00.000-04:002011-05-19T14:59:34.156-04:00Updated PagesBesides overhauling my blog (which I have been wanting to do forever), I finally have begun to add individual PAGES across the top. Please, please, please, feel free to link them, email them, post them on BabyBump or BabyCenter forums as you see fit for other new mothers or mothers-to-be facing a diagnosis of Down syndrome. <br />
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I am not finished adding yet. I have added a preface to Cameran's birth story before linking it to the original post as well as a page with answers to questions I have been asked recently on various pregnancy boards. In addition, I am working on links to various celebrities who have personal connections to individuals with Down syndrome or who advocate for our enhanced children. <br />
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I will leave you with a smiley rainy day photo montage of Miss Peanut :)<br />
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<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjjNaHbJbq4a8Q46qoX_nKFtUaDww30ngHJAAMH3eD17v0lo_E3Rgl__GLU86WwVf4xgpFPWW6snYswbmR34B2jJA5n3UrIX22Pazs3gW83z6uh8TiUbLraakB04aEOurEIK1S-zPuTrp8/s1600/4.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320px" j8="true" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjjNaHbJbq4a8Q46qoX_nKFtUaDww30ngHJAAMH3eD17v0lo_E3Rgl__GLU86WwVf4xgpFPWW6snYswbmR34B2jJA5n3UrIX22Pazs3gW83z6uh8TiUbLraakB04aEOurEIK1S-zPuTrp8/s320/4.JPG" width="239px" /></a></div>Jenhttp://www.blogger.com/profile/07854458341391943756noreply@blogger.com1tag:blogger.com,1999:blog-3568704641830136846.post-78476046436906277932011-05-17T15:15:00.001-04:002011-05-17T15:16:34.906-04:00They Just Keep Comin'<span style="font-size: large;">It has really truly been occuring to me lately that Cameran is already far more capable than I see in the (unfortunate) few hours that we spend together from Monday to Friday. For this I am both saddened and elated. Saddened because I am not there to witness her small, but noticable achievements, but all the more elated that they are happening with or without Ryan and I present.</span><br />
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<span style="font-size: large;">A few examples to serve my point:</span><br />
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</span><br />
<span style="font-size: large;">On Monday, as I was dropping Cameran off at daycare, one of the two little twin boys who adore Cami saw her, and as usual cheerfully announced, "Hi Cammin!"</span><br />
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</span><br />
<span style="font-size: large;">Cameran looked at him. Cameran then proceeded to walk over to him. Now don't get me wrong, Cameran has been walking, albeit shakily, for some time now, but apparently she is getting to be one brave girl at daycare. Little twin lover's response was, "Look everyone, Cammin's walkin'!" He was so excited for her, and my heart swelled. And dammit, that's when I had to leave. Oh, to be a fly on the wall.</span><br />
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<span style="font-size: large;">One recent afternoon, Cameran's teacher told me all about Cameran's new nickname...."Shadow". Cameran loves her some Ms. Julie--apparently so much so that she follows her around the room and actually shows annoyance when Ms. Julie is not paying enough attention to her. </span><br />
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<span style="font-size: large;">There have also been reports of Cameran participating in "parallel play". While I know this is not totally wonderful, the fact that it is a step in the right direction is major! We may never know how much time we "lost"- developmentally speaking -from her seizures, so this is an awesome step forward. Before Cameran was content to observe. Now at least she watches and tries to participate or at least go to the group of children and whatever it is they are doing.</span><br />
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<span style="font-size: large;">STEPS.</span><br />
<span style="font-size: large;">This mama hasn't been brave enough to get Cameran anywhere near steps. On her own, she has shown no interest in climbing them. PT has worked with her on occasion, and has said she has done well going up. I decided to put this to the test...Last night before bedtime I decided to suck it up and see what Cameran's climbing skills looked like. Girlfriend's got game. Other than prompting her for the first few, she went to the top--14 stairs--all by herself! Yikes. Break out the gate!</span><br />
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<span style="font-size: large;">All in all this has been a great few months. If we can get through the rest of the tooth explosion and jump on the self-feeding bandwagon prior to Baby G #2's arrival, then I will be in total bliss!</span>Jenhttp://www.blogger.com/profile/07854458341391943756noreply@blogger.com1tag:blogger.com,1999:blog-3568704641830136846.post-90560994782474767272011-05-15T11:34:00.005-04:002011-05-16T14:56:32.847-04:00Today's Dose of HopeI am a few days behind this story flying through the blogosphere, but I am linking it anyway...<br />
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This story speaks for itself. It is a testament to parents who are willing to let their children spread their wings and fly. <br />
<br />
Go ahead.<br />
<br />
Read.<br />
<br />
Try not to cry (happy tears) at one more story of hope for our children.<br />
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<a href="http://www.dallasnews.com/news/community-news/dallas/headlines/20110515-east-dallas-couple-with-down-syndrome-discovers-joys-challenges-of-marriage.ece?ssimg=182617#ssStory183820">Married couple with Down syndrome living INDEPENDENTLY</a>Jenhttp://www.blogger.com/profile/07854458341391943756noreply@blogger.com0tag:blogger.com,1999:blog-3568704641830136846.post-85478785364629311892011-05-10T13:02:00.000-04:002011-05-10T13:02:06.891-04:00Playing Catch-Up in Pictures (Easter and Mother's Day)I realize I never posted anything about our Easter. <br />
Ryan went out of town for his grandma's surprise 80th birthday party in Wisconsin. I decided to stay home with Cameran and go to my folk's house as usual, especially since madre is still immuno-suppressed and basically housebound.<br />
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Saturday we dyed a few eggs at Nanny's house. Sunday morning we went to church for a big breakfast, and then headed back to my parents' house before going to the airport to pick up Daddy.<br />
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This past weekend was nice and relaxing. We took a little ride on Saturday to pick up Ryan's cap and gown. (Yay Master's Degree!) Sunday we relaxed, went to church, stopped by my parents' house briefly, and went home to enjoy the fantastic weather. Ryan treated me to steamed crabs and steak kabobs on the grill--oh, and corn on the cob--one of my favorite combos! Ryan begrudgingly played photographer to a cranky, teething toddler and his hormonally challenged wife. Here are some of the results...<br />
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All in all, with my birthday sandwiched in between Easter and Mother's Day, the past three weekends have been a blast!Jenhttp://www.blogger.com/profile/07854458341391943756noreply@blogger.com0tag:blogger.com,1999:blog-3568704641830136846.post-43584074877535820982011-05-01T21:21:00.002-04:002011-05-01T21:25:18.461-04:00Q & A for Mommies-to-Be of possible baby with DsHere are some questions I have recently been asked on various message boards about what its like raising a child with Down syndrome.<br />
<strong>1. With your daughter what challenges do you face?</strong> <br />
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She is our first child, and I believe that helps that I don't have an older child to "compare" her to. Sure, I see her developing at her own pace compared to "typical" (the PC term for children without syndromes or other exceptionalities), but that is par for the course with us. Cameran does things at her own pace, so patience is key. But we celebrate like there's no tomorrow when she hits a milestone because they are that much more special. <br />
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<a href="http://www.ndss.org/images/stories/NDSSresources/developmental_milestones">http://www.ndss.org/images/stories/NDSSresources/developmental_milestones</a><br />
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We have been fortunate (overall) with Cameran's health. A main concern is that of various heart defects, all with varying degrees of severity. Cameran has what is called a small (barely measurable) PFO, and is monitored once a year. She has not had heart surgery, which sometimes is necessary. Although we avoided heart issues, Cameran did develop seizures around a year. She was treated vigorously for about three months, and has been seizure-free since, and also is medication free. Cameran sees various other specialists, including an Ear, Nose, and Throat Dr for recurrent ear infections (pretty typical), she sees a pediatric opthamologist and has a pretty cute pair of glasses that we wear occasionally for a bit of far-sightedness.<br />
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Any child with a developmental disability, whether physical, chromosomal, or other, is entitled to early intervention services. We are fortunate to live in Pennsylvania where they are 100% covered. This has never been an issue for us. Her physical therapist, occupational therapist, developmental therapist (helps with social skills and play imitation) come to our home or to Cameran's daycare. And yes, Cameran is in a regular daycare setting with typical children. <br />
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Are these challenges? I suppose to some. We just do them because it's what you do. Most communities have active Ds associations. Cameran has a playpals group that meets once a month for arts and crafts, singing, and snack. It's also a great chance for parents to get together and talk. Buddy Walks are great too.<br />
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Put it this way, most geneticists (yes we went to one after Cameran's diagnosis and we are fortunate to live 40 minutes away from Hershey Medical Center) will tell you that once a mother has a pregnancy (whether she gives birth or terminates is irrelevant) where Trisomy 21 or any other Trisomy is present, her odds statistically speaking automatically rise to 1:100 unless her age advances the odds to even greater. So I was 27 when I was pregnant with Cami. Then my odds (depending on where you get your info) were roughly 1:1100. I chose no testing, ultrasounds picked up nothing, and Cameran wound up being the "1" in that 1100. Did that stop us from getting pregnant again knowing that now our odds are 1:100? No. I am due September 9th. I suppose everything is simply a matter of perspective.<br />
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<strong>2. How has having a child with special needs affected your family's lives?</strong> <br />
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Well, I have no clue how it will affect our little girl who has yet to come. I do know that all of the families I know, both in real life and in the bloggy world, who have multiple children and one has Ds are happy and do very typical things. Some have an oldest child with Ds, others a middle child, and some the youngest. I don't really think about how it has impacted my family's life because we just do it. This is our life, and we are living it to the fullest. I know that there is a higher incidence rate of divorce for couples who have children with disabilities, and that it is important to still take time for one another, just as you would having any child with or without special needs. I also know that we have an awesome support system of family and friends. My husband's family lives out of state, but my parents are about 40 minutes away. It also helps that we are both in education. My husband is a guidance counselor and I teach language arts. Both of us have had special education training. <br />
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Personally, survival to me means not looking too far into the future, because that is when I tend to get overwhelmed with the "what ifs", much like mommies-to-be are doing when they are fretting about the "what ifs" for their unborn babies. I do know that it is not fair to "expect" this new baby of ours to "take care" of Cameran once we are gone. We are in the process of setting up a living will, and it all goes back to the wonderful support network we have in place. Looking back, hubby and I were in shock after the diagnosis, wallowed for 2 weeks or so, and then realized that life is too short to feel sorry that we did not "get" the baby we expected. We prayed, we talked, we got our sh*# together, and moved to the place of acceptance where Cameran is not Down syndrome; Cameran has Down syndrome. It does not define her entire being, it is one facet of her make-up. We (and others) can choose only to see the T21, or to see Cameran, as a whole unique individual. <br />
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You will hear a lot about "people first" language in ANY special needs community. Some people are fanatical about it, some just go with the flow. I am more the latter, but will impress the point without trying to come across like a bi%#@ ;) Case in point: my friends don't come up to me and say "How's Cameran's Down syndrome?" or "Jen, yeah she's the mom with Down's kid..." Cameran is a person with Down syndrome, she is not a "Down syndrome kid". Also, in the United States, it is "Down syndrome". No "s", and lowercase "s" in syndrome. Not a big deal, just a tidbit. <br />
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<strong>3. Is there a financial burden involved with having a child with special needs?</strong> <br />
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I always joke that Cameran's Ds diagnosis has actually saved us money. Despite the fact that she has umpteen doctor's appointments, a child with a diagnosis such as Down syndrome will receive supplementary insurance (Medicaid), or for a family who does not otherwise have insurance or has insurance that is not very good (for lack of a better term) Medicaid will serve as the primary. For example, we have Highmark BlueShield. It is ALWAYS listed first. Hubby and I have a $20 copay. Cameran is on this insurance. Without having Ds, Cameran would also have a $20 copay per office visit. Coupled with Medicaid (We use United Healthcare, formerly Unison), we pay ZILCH as long as her Dr is in-network. The only Dr. we have a copay for is her Ear/Nose/Throat Doc because we CHOOSE to go out of network bc the ones in network are not that great. Cameran had pneumonia in early March, went to the ER, and was admitted for 2 nights. Paid nothing. <br />
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I by no means am trying to glorify this, but between early intervention services and Medicaid, there is truly no financial burden for us. The only thing I purchase extra, and at this point, BY CHOICE, is Pediasure, to ensure she is getting extra calories and nutrients 'cause girlfriend is a long and lean toothpick. Does that mean all families are this lucky? Probably not, but I am simply speaking from our experience here in Pennsylvania.<br />
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<strong>4. Has having a child with Down syndrome caused any relationship issues?</strong> <br />
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As I mentioned before, the hubster and I were in shock for a few weeks after Cameran's birth. We have amazing friends and family who were our rocks during this time. We have regular sitters (both family and friends) who watch Cameran so we get alone time. There is nothing that Cameran can't do that a typical child can, it just. takes. longer.<br />
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By nature we want to "fix" things so we can continue with our status quo, whatever that may be. There are no certainties in life. Car accidents, tornadoes, plane crashes, etc., are all out of our control. We all want a perfect baby. I wanted a perfect baby. Cameran is a perfect baby, but in a different way. Any of us, Down syndrome or not, could go on to have our child be diagnosed with autism, which now has reached, according to Autismspeaks.org, the alarming diagnosis rate of 1:110. We can't do anything to stop that rate from climbing. Sure, depending on beliefs we can stagger vaccinations, or drop them all together if we are in the camp that vaccines are the cause (sidenote-I don't buy into that and it has been debunked but that is a whole other can 'o worms and a debate that isn't my cup 'o tea). I guess my point is, we can't take ANY test to predict whether or not our child will develop autism, yet we aren't afraid to get pregnant.<br />
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Moving on, here are some quick resources to use while you are making the right decision for you and your family...<br />
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Here is a website that is very user-friendly and accurate--<br />
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<a href="http://www.ndss.org/">www.ndss.org</a> (This is the National Down syndrome Society)<br />
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The specific portion "about down syndrome" is a link that very objectively goes through some statistics, health concerns, and common myths associated with Ds. Also, the link to "My Great Story", shares stories from families and individuals with Down syndrome that covers various aspects of life. <br />
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My absolute favorite blog to follow is <a href="http://www.kellehampton.com/">www.kellehampton.com</a>. <br />
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Kelle coincidentally just attended the NDSS luncheon in NYC this past Wednesday and her most current blog post goes into candid detail about this event. She has links to the Birth Story of her daughter, Nella Cordelia, that chronicles her path to finding peace with Nella's postnatal diagnosis.<br />
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This link shares an article by Melissa Riggio, a young adult with Down syndrome. <a href="http://kids.nationalgeographic.com/kids/stories/peopleplaces/downsyndrome/">http://kids.nationalgeographic.com/kids/stories/peopleplaces/downsyndrome/</a><br />
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Finally, <a href="http://youtu.be/F11WDTzogSc">here</a> is a clip from this week's NDSS luncheon, featuring Kelle Hampton speaking about the birth of her daughter and her family's postnatal diagnosis.Jenhttp://www.blogger.com/profile/07854458341391943756noreply@blogger.com2tag:blogger.com,1999:blog-3568704641830136846.post-83253282707984296162011-04-30T13:59:00.000-04:002011-04-30T13:59:40.410-04:00*Fear of the Unknown*<strong>I have wanted to write a post on this topic for some time now and have put it off for a variety of reasons. Will I offend someone? What if words are taken out of context? Yada Yada. But you know what? This is my space, and it's being written. So here it goes...</strong><br />
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<strong>A few weeks prior to my level II ultrasound I was fiddling around with some new apps for my iPhone. One I came across was BabyBump, much similar to Circle of Moms and The Bump. I have been receiving weekly updates, etc. What I became drawn to were the message boards, specifically the Tests and Checkups and the High Risk Prengancy forums. </strong><br />
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<strong>It became clear that many mommies to be in the Testing forum are nagged with worries about the "statistics" regarding their little babies. </strong><br />
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<strong>Certainly one's personality and possibly her belief system play a role in deciding how much prenatal testing to undergo. </strong><br />
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<strong>For the most part, I can be laid back. I was young, 27, when I was pregnant with Peanut. Because of our belief system, coupled with not wanting to do any unncessary worrying, we chose not to have prenatal testing, including the early screenings, other than ultrasounds. Guess what? I had a stress free pregnancy. It was great (minus the horrid morning sickness).</strong><br />
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<strong>Other mommies to be couldn't/wouldn't want to take the avenue that we chose. I respect that. To each his own. </strong><br />
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<strong>Fear is the hidden monster that consumes our thoughts when things *might not go as planned*. Did I ask God to give me a child with special needs? Nope. Did I ever in a million years think I "could handle" having Cameran prior to her birth? Nope. </strong><br />
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<strong>Guess what? He did and I am.</strong><br />
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<strong>90% of children like Cameran are aborted usually due to a "possibility" of Down syndrome. Some of these babies would have had Ds and others would have turned out perfectly fine. </strong><br />
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<strong>Of course the majority of doctors have limited experience dealing with Ds and wind up giving outdated information which winds up scaring new mommies. </strong><br />
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<strong>So here is where I get a little baffled...</strong><br />
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<strong>Statistically speaking, chances for having one's child be diagnosed with autism </strong><a href="http://www.autismspeaks.org/whatisit/index.php"><strong>(found here)</strong></a><strong> are higher than most any mommy-to- be's, regardless of age, chances of having a baby born with a chromosomal abnormality. Yet, we still get pregnant every. day. </strong><br />
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<strong>100% of children with autism are here, and 100% of mommies have to deal with their diagnosis. No prenatal chances, odds, or confirmations help these mommies decide what to do prior to birth.</strong><br />
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<strong>So what makes the fear of Down syndrome and other trisomies greater than the fear of a possible diagnosis of autism after a child has been born?</strong>Jenhttp://www.blogger.com/profile/07854458341391943756noreply@blogger.com5tag:blogger.com,1999:blog-3568704641830136846.post-88958588814034141092011-04-28T20:45:00.001-04:002011-04-28T20:46:03.120-04:00The Big 3-0I can say that I haven't necessarily been dreading this particular birthday, but it would be nice to go out for a celebratory beverage as I enter the second third of my life. Thanks a lot Baby G#2.<br />
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To celebrate, my fabulous coworkers decorated my room and gave me items in quantities of 30 which led up to lunchtime when the 30s theme was all-out craziness and full of inside joke gifts that would make your mama blush.<br />
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At home Cameran and I relaxed while waiting for Daddy to get home. He came home bearing gifts. A new iPhone 4 (the new white color to be exact) and a cute coffee mug. Apparently jewelry was in the running, but I must've unknowingly been talking a lot about my phone crapping out lately so the ole iPhone has been retired and alas I have a new phone on which to check Facebook and play Words with Friends ;)<br />
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Ryan took Cami to Olive Garden to pick up dinner which gave me about 45 minutes of solitude. It was nice and relaxing. All in all, a nice low-key birthday. Saturday we have a sitter for Cameran and will be going out and about then to continue this newly foreign decade :)<br />
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I will end with some pictures.<br />
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<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhxXOXmZQDFzgVQ_KiJjqgmA4_Tn1dDP9uej3ZJmpn2sWvEI9Ms-Mmq_TPIWSnWJmKaSL2bpx1O2odvzEuu0zGVCC4fu6gkmJmgJx0-2D3eOYtgSr-7WMDvQdEHpYNKOjlEQ_sC13I6DQk/s1600/Birthday+Collage.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="640" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhxXOXmZQDFzgVQ_KiJjqgmA4_Tn1dDP9uej3ZJmpn2sWvEI9Ms-Mmq_TPIWSnWJmKaSL2bpx1O2odvzEuu0zGVCC4fu6gkmJmgJx0-2D3eOYtgSr-7WMDvQdEHpYNKOjlEQ_sC13I6DQk/s640/Birthday+Collage.jpg" width="640" /></a></div><br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiP2lEKFM_5lCe6c0iAHXHSkicDvgsGARnYZxRtwtEdDF-JuXY3cvXjdO0s6IfLMEz0rip_xFGcltt2zmHCBad99QarNy3fy7Lo_TPZcp0DuAPoJnQ2prianXu6ChX_lLmfyW_fTzPUfLQ/s1600/Birthday+Collage+2.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="216" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiP2lEKFM_5lCe6c0iAHXHSkicDvgsGARnYZxRtwtEdDF-JuXY3cvXjdO0s6IfLMEz0rip_xFGcltt2zmHCBad99QarNy3fy7Lo_TPZcp0DuAPoJnQ2prianXu6ChX_lLmfyW_fTzPUfLQ/s640/Birthday+Collage+2.jpg" width="640" /></a></div>Jenhttp://www.blogger.com/profile/07854458341391943756noreply@blogger.com2tag:blogger.com,1999:blog-3568704641830136846.post-29559461390717517912011-04-20T19:39:00.000-04:002011-04-20T19:39:32.000-04:00Undeniable.Baby G # 2 definitely has...<br />
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<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh885zx8gPt_lNfiquT1JT3ML9Tfqf1WTqcIQdR8dPkGEyvNhsUyy9E2Mq4Lj0LRO9sq-nzF5YpNMZxDVg79FzTB6lf8sUZsHj8c4IGREREfwWS3CK5-HRZrzVNCtlVN3OTi_TS8S4W6X0/s1600/4_20ultrasound1.JPG" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh885zx8gPt_lNfiquT1JT3ML9Tfqf1WTqcIQdR8dPkGEyvNhsUyy9E2Mq4Lj0LRO9sq-nzF5YpNMZxDVg79FzTB6lf8sUZsHj8c4IGREREfwWS3CK5-HRZrzVNCtlVN3OTi_TS8S4W6X0/s320/4_20ultrasound1.JPG" width="240" /></a></div><br />
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<div class="separator" style="clear: both; text-align: left;">It's 100% undeniable now. Unfortunately for hubster my one smartass colleague says, and I quote, "It takes a real man to put a stem on it", so sorry Ryan, you are 0 for 2. It's okay though, you can be the King of the Castle surrounded by your Queen and two royal Princesses.</div><div class="separator" style="clear: both; text-align: left;"><br />
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And as for trying a third time, I am pretty sure Ry's ready to cut his losses, because, as he puts it, his luck isn't that great and he would wind up with three girls ;)</div><div class="separator" style="clear: both; text-align: left;"><br />
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</div><div class="separator" style="clear: both; text-align: left;">It's all good though, because this ultrasound was awesome. My anxieties were squelched pretty early on as the technician talked her way through each shot and body part, explaining what she was looking for. She took no less than three pictures of each vital part to ensure proper measurements, and took a buttload of cardio pictures so that we could avoid a fetal ECHO. Ryan and I showed pictures of Cameran, and we talked a lot about her pregnancy and finding out about her T21 diagnosis after her birth. </div><div class="separator" style="clear: both; text-align: left;"><br />
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</div><div class="separator" style="clear: both; text-align: left;">Baby G was on the go the entire time, which worked out well for most of the shots that were needed. Apparently her favorite spot is my lower left pelvic region, which could explain a lot of my earlier back pain. Thanks a lot kid. In the end, the perinatologist came in and told us that she looks great, and does not have even one of the seven soft markers for BDs. What a sigh of relief. Although they could not give us ratio stats, our percentage is now <1% for Ds in Baby G #2. I am not so far out there as to think something could not still be wrong; obviously Cameran sailed through ultrasounds with flying colors, but for now I can enjoy 20 more weeks of <strike>not carrying laundry down stairs</strike> flips, kicks, and hiccups.</div><div class="separator" style="clear: both; text-align: left;"><br />
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</div><div class="separator" style="clear: both; text-align: left;">Here are some highlights from the session:</div><div class="separator" style="clear: both; text-align: left;"><br />
</div><div class="separator" style="clear: both; text-align: left;">She mooned us almost immediately...</div><div class="separator" style="clear: both; text-align: left;"><br />
</div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgTjgc0meRavlTzcfzaHhMHv70Lwi9-_D86hJSkoE_8BiuJH8nQDw6EEAnm29idfKT-ZCCHN8kLmtfteqV0_9anJQirCpGzJpKzwQkr_U9GBS1dBvs2iGFA00xM0IvX-rtz8gukT8OiOBA/s1600/4_20ultrasound2.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgTjgc0meRavlTzcfzaHhMHv70Lwi9-_D86hJSkoE_8BiuJH8nQDw6EEAnm29idfKT-ZCCHN8kLmtfteqV0_9anJQirCpGzJpKzwQkr_U9GBS1dBvs2iGFA00xM0IvX-rtz8gukT8OiOBA/s320/4_20ultrasound2.JPG" width="240" /></a></div><div class="separator" style="clear: both; text-align: left;"></div><br />
She even showed off her potential at yoga and pilates...<br />
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<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh1KOEcQL3LYnGw8g_EfpuzVwon51WLg_A4IUWhjxjY_v_nP8uEN3CnD_JbEheFP4xSiTkgbXNsGXMJvm1nY-IWhxyoAqN404gCgsdBY14gnJkgj2Si_xZxygkTKIAAzgQfPAAbXQDTNH8/s1600/4_20ultrasound4.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh1KOEcQL3LYnGw8g_EfpuzVwon51WLg_A4IUWhjxjY_v_nP8uEN3CnD_JbEheFP4xSiTkgbXNsGXMJvm1nY-IWhxyoAqN404gCgsdBY14gnJkgj2Si_xZxygkTKIAAzgQfPAAbXQDTNH8/s320/4_20ultrasound4.JPG" width="240" /></a></div><br />
So here's to Baby GIRL G. We love you and are glad you are looking healthy.<br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh_Rlo0XcZBEAlhxhhuFgGq08joEAwO3rGueNhhZjxSKWgFUOfB3GFlB8tcsbMUQ6spJYbjjNOTuNZ38vIuy5yuuafJWqtYAx240VhHbwP9A4KABdEsoFbnUHxrx0PEUAkgZgM6WeGUh-g/s1600/4_20ultrasound3.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh_Rlo0XcZBEAlhxhhuFgGq08joEAwO3rGueNhhZjxSKWgFUOfB3GFlB8tcsbMUQ6spJYbjjNOTuNZ38vIuy5yuuafJWqtYAx240VhHbwP9A4KABdEsoFbnUHxrx0PEUAkgZgM6WeGUh-g/s320/4_20ultrasound3.JPG" width="240" /></a></div>Jenhttp://www.blogger.com/profile/07854458341391943756noreply@blogger.com4tag:blogger.com,1999:blog-3568704641830136846.post-30912441921847048232011-04-17T07:46:00.000-04:002011-04-17T07:46:09.657-04:00The Verdict is In...<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEij39cGkBtFTmQhr3tz1-oenC0D05mDahnTnG6yJLWwzGyjdpelz6fp7-CgXGIykvVf0_OasCXCwmlRPVTpPFyNxHHRLQVK5EUfdvhpiI-kXVU-PNZbI5nXG3LZNHWRFPdNDklvAOfj-5o/s1600/15.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEij39cGkBtFTmQhr3tz1-oenC0D05mDahnTnG6yJLWwzGyjdpelz6fp7-CgXGIykvVf0_OasCXCwmlRPVTpPFyNxHHRLQVK5EUfdvhpiI-kXVU-PNZbI5nXG3LZNHWRFPdNDklvAOfj-5o/s320/15.JPG" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Where are we going in this cold, nasty wind and rain??</td></tr>
</tbody></table><br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg2cKtHvBeER1FsKu_86aA3lpR0O7YZAeazjQiqFvjaxfmFCvbc6yn1p3f-xQEOsQ_yqo0intTHbcq-KoxEAXC0T3UO5pWBO1aMY49uF72XMkrCNbfuxEM053tDUXJ772qmjcSXNrSyeJI/s1600/16.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg2cKtHvBeER1FsKu_86aA3lpR0O7YZAeazjQiqFvjaxfmFCvbc6yn1p3f-xQEOsQ_yqo0intTHbcq-KoxEAXC0T3UO5pWBO1aMY49uF72XMkrCNbfuxEM053tDUXJ772qmjcSXNrSyeJI/s320/16.JPG" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">You mean I get to find out if Baby G is a boy or a girl? Alright! I'm in!</td></tr>
</tbody></table><br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhp__kjdRIG51yZAhm4tC4IYjMiqUoVX8J0IG2arKc229WvcBHz0wGyGfTZhzQj0ViuRj6IvAbN1_A-fsiOh0pFtNzaetxBgw7YygwmPlRkvMvkThVVkltpBoeLevQWoeJCm8n3l7POMGk/s1600/17.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="238" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhp__kjdRIG51yZAhm4tC4IYjMiqUoVX8J0IG2arKc229WvcBHz0wGyGfTZhzQj0ViuRj6IvAbN1_A-fsiOh0pFtNzaetxBgw7YygwmPlRkvMvkThVVkltpBoeLevQWoeJCm8n3l7POMGk/s320/17.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Mommy and me posing for Daddy in the waiting room.</td></tr>
</tbody></table><br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiRQuegvfCw0lW6aSbcPog3bGdbjcCQ5DGWNamKtmffSzZjMIilk-X7f9nWFQJO158NcSLVfMOoHPzY0qybcgRFGO6ZrP5wf2ZkUtIbrnz4zgXK7G2RbR1iqWuNxOWwP48fyaaLf5_9pew/s1600/18.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="238" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiRQuegvfCw0lW6aSbcPog3bGdbjcCQ5DGWNamKtmffSzZjMIilk-X7f9nWFQJO158NcSLVfMOoHPzY0qybcgRFGO6ZrP5wf2ZkUtIbrnz4zgXK7G2RbR1iqWuNxOWwP48fyaaLf5_9pew/s320/18.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Sheesh Mommy, everyone keeps saying you've "popped" this week. That or you ate WAYYYYY too much.</td></tr>
</tbody></table><br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgb0XckwX08EriW-vNoG-dqSAaQW8oICz7UHg9N3jv51zhZvC5ELQIV1efWmW8LkApA1AzqGVqgoG1CBcORbOZ299O9RdikgmmDrA1Gg22-3FCyxsPFaFNiDeEvojU_SmEUbIYS-tLx1-I/s1600/19.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgb0XckwX08EriW-vNoG-dqSAaQW8oICz7UHg9N3jv51zhZvC5ELQIV1efWmW8LkApA1AzqGVqgoG1CBcORbOZ299O9RdikgmmDrA1Gg22-3FCyxsPFaFNiDeEvojU_SmEUbIYS-tLx1-I/s320/19.JPG" width="238" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">This little baby was one big wiggleworm, but not in a helpful way. Feet crossed up top, in between the carrots is the answer...</td></tr>
</tbody></table><br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj3iFNWiDokdRs1q-LMYUjCGkuX6z9uwHJ-P_dA0-kyn6NRA_aP53FySzTncy61ZCaF8vfIhOi9Zct4G8PZTGUoJG8z4QHP-D_1lAqGJSNjp7nQmCGNeHE3HL0XPJ7L-JcNXHx0-JdEe4k/s1600/20.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj3iFNWiDokdRs1q-LMYUjCGkuX6z9uwHJ-P_dA0-kyn6NRA_aP53FySzTncy61ZCaF8vfIhOi9Zct4G8PZTGUoJG8z4QHP-D_1lAqGJSNjp7nQmCGNeHE3HL0XPJ7L-JcNXHx0-JdEe4k/s320/20.JPG" width="238" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Here I am.</td></tr>
</tbody></table><br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjvlW0J-I_LUMv3igFCim6PpY7LED7gHNWLQjQSlp_D_OZvpzlSsiUeKrUq_5JfoWH2Z3i1AgN4uXf84YRE31xBg9GiuF0-Y55yoHLVLwz3md8uMpPyGv6fWBmwbaV_OHOKr3YERgwMrqU/s1600/21.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjvlW0J-I_LUMv3igFCim6PpY7LED7gHNWLQjQSlp_D_OZvpzlSsiUeKrUq_5JfoWH2Z3i1AgN4uXf84YRE31xBg9GiuF0-Y55yoHLVLwz3md8uMpPyGv6fWBmwbaV_OHOKr3YERgwMrqU/s320/21.JPG" width="238" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">?????</td></tr>
</tbody></table>...Well, with approximately 80% accuracy that is...Hopefully Wednesday can confirm this and we can move on to the name game :)Jenhttp://www.blogger.com/profile/07854458341391943756noreply@blogger.com0tag:blogger.com,1999:blog-3568704641830136846.post-26823632556585431552011-04-16T11:28:00.000-04:002011-04-16T11:28:07.376-04:00Catching UpSince the transplant there have been many topics I've wanted to blog about, but haven't gotten around to posting. I don't know if it is my procrastination or the fact that I want to have the idea solidified in my mind before keystrokes begin. <br />
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In any case, this is more of a stream of conscious catch-up of the first two weeks of April.<br />
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My mom's kidney is functioning well. Her recovery is slow, and she is still weaker than pre-surgery, but is continuing to recover.<br />
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Cameran is now a full-fledged "walker". Sure it looks a little sketchy, but I would say by the end of the first week of April she became consistently determined to walk. She has perfected crawling, in true Cameran fashion, waiting until she could do it proficiently before showing off. No army crawl for this girl. It's the real deal. When she stands and wants to turn it is hilarious because it is like she is doing the one-footed pivot until she completes a circle and gets turned to where she wants to go. <br />
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She even did some great walking with her Special Instructor earlier this week...outside...on grass...on an incline!! <br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi6TThIUTxOI_r3-HIcH2j1U1_Z20fnbGMVXzITl1Oe5-g7hLLDJ_J407Br2oTvQGK4fQanSSB8TW-RH_4iuYXpSSkCUs6UYhP021_pnMKEUZE7ap0xjyyXlSent_JghaM-_W6MfkfCT5Q/s1600/13.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi6TThIUTxOI_r3-HIcH2j1U1_Z20fnbGMVXzITl1Oe5-g7hLLDJ_J407Br2oTvQGK4fQanSSB8TW-RH_4iuYXpSSkCUs6UYhP021_pnMKEUZE7ap0xjyyXlSent_JghaM-_W6MfkfCT5Q/s320/13.JPG" width="240" /></a></div><br />
Around the same time the walking began her first bottom front tooth began its emergence into the light. Two little ridges now poke through. Slow and steady. The 2 1/2 toothed 24 month old.<br />
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I need to post separately about going to Princesses on Ice. We went with some friends on April 2nd. Girlfriend LOVED the show, and even stayed awake until the last princess at 8:45!<br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhHNfLBF0sc7s9Ep8x7YzPa8ggR-Bx4UQce0uaCoLOYj9n7P2xBU2ZPswYmmlQe3imrgfjeTZaNIOvhY53nuodzlRdA-U-dX29cXAtwbZZpO1CCP0VMkG6znu-yUQh18v09aaJ0eaHHdRg/s1600/2.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhHNfLBF0sc7s9Ep8x7YzPa8ggR-Bx4UQce0uaCoLOYj9n7P2xBU2ZPswYmmlQe3imrgfjeTZaNIOvhY53nuodzlRdA-U-dX29cXAtwbZZpO1CCP0VMkG6znu-yUQh18v09aaJ0eaHHdRg/s320/2.JPG" width="240" /></a></div> Driving to Hershey.<br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhTV1yXGGiIr5eo5qmrxiMF5etWQBMC9sVxhVSpzL7DKqiHQJApd7y9LtiK9W-auEMYBIMXhLqIMTsncBqhJHeT2Pgy_dGo6psbMOgkNofJLc2_aO6ccd7TtRTTuNzsEIWRb7-XoBbvLP8/s1600/3.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhTV1yXGGiIr5eo5qmrxiMF5etWQBMC9sVxhVSpzL7DKqiHQJApd7y9LtiK9W-auEMYBIMXhLqIMTsncBqhJHeT2Pgy_dGo6psbMOgkNofJLc2_aO6ccd7TtRTTuNzsEIWRb7-XoBbvLP8/s320/3.JPG" width="240" /></a></div><br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEge3o9PA2u41NJIUgQ-TgGqAFtngzZrgTJq3qcxbnXqn9aYchvukQ_Wu54Gp0B3bm4Hw3H4iRO_tU2oe3qOigfFVRL9_uNA4ZmmY-samokv-a5r14tr0wMDUjwdoUKp-Z7Bk2Y4SlXqt3o/s1600/4.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEge3o9PA2u41NJIUgQ-TgGqAFtngzZrgTJq3qcxbnXqn9aYchvukQ_Wu54Gp0B3bm4Hw3H4iRO_tU2oe3qOigfFVRL9_uNA4ZmmY-samokv-a5r14tr0wMDUjwdoUKp-Z7Bk2Y4SlXqt3o/s320/4.JPG" width="240" /></a></div><br />
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<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhQZY35s2FHZB7QXwWe2bvqjeDPUcferwmHAHNYBMa9efWRLZ9IOr18vEwiMp7Wa0NSHQSuObUpTlgmYz6FzEjTOCiyah4PIdLgdtKOrhQ5kn7fe5EFh_n6G0cGYAUfokCWxS2EQs256sY/s1600/6.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhQZY35s2FHZB7QXwWe2bvqjeDPUcferwmHAHNYBMa9efWRLZ9IOr18vEwiMp7Wa0NSHQSuObUpTlgmYz6FzEjTOCiyah4PIdLgdtKOrhQ5kn7fe5EFh_n6G0cGYAUfokCWxS2EQs256sY/s320/6.JPG" width="240" /></a></div><br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEheRqs0XmF7ATUjKxx6yvuA5fjTlHqQ6z4g1u247YY1egZIfIXLUJIt2rhvANCkPFy4DdF6mlpzlq79JNFNtWdvlA7k-EqFoD2Zo11gO1hI_pm64FEHLomBOf2eoUGyM-pL0-45kstVaGE/s1600/7.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEheRqs0XmF7ATUjKxx6yvuA5fjTlHqQ6z4g1u247YY1egZIfIXLUJIt2rhvANCkPFy4DdF6mlpzlq79JNFNtWdvlA7k-EqFoD2Zo11gO1hI_pm64FEHLomBOf2eoUGyM-pL0-45kstVaGE/s320/7.JPG" width="240" /></a></div>Did I mention she sat in her own seat, courtesy of my friend Heather and my knees holding her seat down since apparently 21 lbs isn't enough weight to do the trick and she folded up in the seat at first!<br />
Last weekend was Ds PlayPals. Many of our friends were off at CHOP for a Ds conference, but we had fun with two other little friends and even made a field of Easter bunnies during craft time!<br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgC-_cO0f4Ea_26eTi5F2TBZIiLzzV5q97p8HLSFvZ8GGmVjiQxbPWlyduGIdBJ3HBTDyOiRh8bHInextd0Jf7xZPRaZBMpnSZaA5Rj9de5mEYOlKNQaGgcfVIqIDyvJPwnd2Z5Kw8h6fc/s1600/8.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgC-_cO0f4Ea_26eTi5F2TBZIiLzzV5q97p8HLSFvZ8GGmVjiQxbPWlyduGIdBJ3HBTDyOiRh8bHInextd0Jf7xZPRaZBMpnSZaA5Rj9de5mEYOlKNQaGgcfVIqIDyvJPwnd2Z5Kw8h6fc/s320/8.JPG" width="240" /></a></div><br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj7C7Eg_h-NkRs_V9wm_oWqTPfEBxpwbHx3F9eqOJfX7ksbxp30fBp0AQ4q21e3O93b6mRwjeGGyTv-R_K0O7RI_f2c91hGKi5VbcN3o8nC62Pxv2M5clEqpWFGLYEODHzKeOA61N3kKjE/s1600/9.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj7C7Eg_h-NkRs_V9wm_oWqTPfEBxpwbHx3F9eqOJfX7ksbxp30fBp0AQ4q21e3O93b6mRwjeGGyTv-R_K0O7RI_f2c91hGKi5VbcN3o8nC62Pxv2M5clEqpWFGLYEODHzKeOA61N3kKjE/s320/9.JPG" width="240" /></a></div><br />
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<br />
ENT appointment yesterday was uneventful. Cameran was given ear drops to decrease the swelling in the ear that has been persistently bothering her.<br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjH6z-VXK2KyByEHXRyGoaGKNfV3llSRZPKNfPCx5L37MYCxz_hpjtYZqHtH5FAwmGBuMO11WhVy3Aej9CITDB8ggyd5c91Gbm7rRh7aZeroUGOLtTWzIqWxn4EoTIQe1r5LCrS2aDGjQQ/s1600/14.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjH6z-VXK2KyByEHXRyGoaGKNfV3llSRZPKNfPCx5L37MYCxz_hpjtYZqHtH5FAwmGBuMO11WhVy3Aej9CITDB8ggyd5c91Gbm7rRh7aZeroUGOLtTWzIqWxn4EoTIQe1r5LCrS2aDGjQQ/s320/14.JPG" width="238" /></a></div> Why does she look so grown up?<br />
Hubby passed his Master's Competency Test! Graduation is set for May 21, and his parents are planning to fly in for the ceremony. I am so proud of him (even if I did have to slave away <strike>writing</strike> proof-reading his papers.) <br />
<br />
On a whim last night I decided to call a local ultrasound center to get this baby's gender figured out. I keep thinking that although Wednesday is only five days away, it will be nice to know the gender prior to a Level II ultrasound appointment where they are going to be more concerned with looking for abnormalities than finding out the gender. I am more than a little scared for what Wednesday will bring being that it is really the only glimmer of our odds of knowing whether this baby is totally healthy or also has a little something extra. Either way, ultimately we are still blessed considering we are going to have not one, but two children after being told not a chance...So...here's to hoping for good health and a typical sibling for Cameran to emulate as she grows up. (And yes, there is a gender preference, but I am not even going there being that the first time around I said I just didn't want an ugly baby. Wish granted with an extra helping of genetic make-up ;)<br />
<br />
She is pretty darn cute...<br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgG3si32-0WvEKO6gJXXjuYkdso-L2pM45t5ihwpU_eZUQ-6OyaGtHfhpamAQ_4ePs-p-gDcQl_RzdgseeKqkAKj75JYAJ3_bBtBF4xAe8VDmu44_ksE7f_u65KRQIFhBzKap1rPUKQpCo/s1600/11.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgG3si32-0WvEKO6gJXXjuYkdso-L2pM45t5ihwpU_eZUQ-6OyaGtHfhpamAQ_4ePs-p-gDcQl_RzdgseeKqkAKj75JYAJ3_bBtBF4xAe8VDmu44_ksE7f_u65KRQIFhBzKap1rPUKQpCo/s320/11.JPG" width="240" /></a></div> Even when posing as a disgruntled librarian...<br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgJ6dBj9bf7q4gPm3k7K_F1tq7ks9_CaCXjeusZi_ciiPK_jnBPxlW3YRW9dfhuVOMrF9-5Bg2vAt3-pnsz8kFY1gzJU-MVMotBv8L90UIPpPHnxrVBW3PiwX1IlX5ZPVrlpjr6ffO1oaM/s1600/12.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgJ6dBj9bf7q4gPm3k7K_F1tq7ks9_CaCXjeusZi_ciiPK_jnBPxlW3YRW9dfhuVOMrF9-5Bg2vAt3-pnsz8kFY1gzJU-MVMotBv8L90UIPpPHnxrVBW3PiwX1IlX5ZPVrlpjr6ffO1oaM/s320/12.JPG" width="240" /></a></div>I will leave you with Cameran's favorite new face...<br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgIxmO2jlujT1L2RrYLPsMR4fyPIsrLjsfv1dGthUz76d24itnZTzmpg9cMmp2Nai_Me4IG-3E3hQkCQEz5euFITSEMEw71msZd-WXzKtMZTpjsWkfT1I5pKMHCMyiwxEPYcpm0LFMPJVw/s1600/1.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgIxmO2jlujT1L2RrYLPsMR4fyPIsrLjsfv1dGthUz76d24itnZTzmpg9cMmp2Nai_Me4IG-3E3hQkCQEz5euFITSEMEw71msZd-WXzKtMZTpjsWkfT1I5pKMHCMyiwxEPYcpm0LFMPJVw/s320/1.JPG" width="240" /></a></div>Jenhttp://www.blogger.com/profile/07854458341391943756noreply@blogger.com0tag:blogger.com,1999:blog-3568704641830136846.post-84429003715103467072011-04-02T12:35:00.000-04:002011-04-02T12:35:46.172-04:00Before and AfterWell, today marks four days post-op for my mom and her donor. <br />
<br />
This is what they removed...<br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj5es31XvPguAwPNDAUFEha_xvEF5bjVYX7BsPAgAojLqz2IREj9Xb0NfahYzqQx6MQ_Vw8mJRz8_HQqBo49gdBJuz9fN0UZGRV6-SrT5G-U-l6hubCyofX7N1zH96Erjc7tlZoTN77hR8/s1600/kidney2.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj5es31XvPguAwPNDAUFEha_xvEF5bjVYX7BsPAgAojLqz2IREj9Xb0NfahYzqQx6MQ_Vw8mJRz8_HQqBo49gdBJuz9fN0UZGRV6-SrT5G-U-l6hubCyofX7N1zH96Erjc7tlZoTN77hR8/s320/kidney2.JPG" width="240" /></a></div><div class="separator" style="clear: both; text-align: center;"><br />
</div><div class="separator" style="clear: both; text-align: center;"><br />
</div><div align="left">Yes, that's right. That is my mom's kidney--filled with nasty cysts, hence the term POLYcystic Kidney Disease. It measured a little over 10 inches in length (that is a 5 inch surgical ruler) and weighed between 5-6 POUNDS.</div><div align="left"><br />
</div><div align="left"><br />
</div><div align="left">This is what it was replaced with....</div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhsyCsJtAD06EA2cQDDtVA5HM0ykDnak2bedxpFB0Gjp64Wp8DCzSoqNAjwUvgvyMW5CBP-M8hxOStbHUNg1g6gxweiM9tFeRewjVC9I1YTsITpZ5Jn-RJYTo_w99QDa4WU-Aby9Ha7Dlw/s1600/kidney.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhsyCsJtAD06EA2cQDDtVA5HM0ykDnak2bedxpFB0Gjp64Wp8DCzSoqNAjwUvgvyMW5CBP-M8hxOStbHUNg1g6gxweiM9tFeRewjVC9I1YTsITpZ5Jn-RJYTo_w99QDa4WU-Aby9Ha7Dlw/s320/kidney.JPG" width="240" /></a></div><div class="separator" style="clear: both; text-align: center;"><br />
</div><div style="text-align: left;">Isn't it beautiful?? The prettiest 5 ounce normal kidney I have ever seen. We are eternally grateful to Bettyann. </div><div style="text-align: left;"><br />
</div><div style="text-align: left;">I promised I wouldn't post any hospital pictures, so I will stick to that. If I could, I would've taken and posted a picture of Mom's catheter filled with the most gorgeous urine I have ever seen. New kidney began working immediately!</div><div style="text-align: left;"><br />
</div><div style="text-align: left;">Now Mom is battling nausea from what we assume is a shock to her system since she is on super high doses of anti-rejection drugs, steroids, and others as well. </div><div style="text-align: left;"><br />
</div><div style="text-align: left;">We were hoping she would be released today (Happy Birthday, Mom), but tomorrow is looking more probable.</div><div style="text-align: left;"><br />
</div><div style="text-align: left;">Here is a <a href="http://www.ydr.com/local/ci_17743461">link</a> to the most recent news article that was published about the surgery. There were a few misprints, but overall this one contains relevant facts about PKD, organ donation, and living donorship.</div><div style="text-align: left;"><br />
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<h1 class="articleTitle" id="articleTitle">Lifelong friend steps in to donate kidney <br />
to Shrewsbury woman</h1><!--subtitle--><br />
<div class="articleSubTitle" id="articleSubTitle">She received the transplant from her friend, who is from Baltimore, on Tuesday.</div><!--byline--><br />
<div class="articleByline" id="articleByline">By ERIN THOMPSON <br />
For the Daily <br />
Record/Sunday News<br />
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<div class="articleImageCaption" style="width: 100%;">
From left, Bettyann Russell,
52, of Baltimore, Md., and Barbara Dohler, 53, of Shrewsbury, meet for testing
at Pinnacle Health - Harrisburg Hospital prior to the surgery, in which Russell
donated a kidney to Dohler. (SUBMITTED)</div></div></div><span fd-id="default" fd-type="end"></span></div>
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<span fd-id="default" fd-type="start"></span><span class="dateline">York, PA - </span>A normal kidney weighs about 5 ounces and is about the size of a computer <br />
mouse.</div><div class="articleBody" id="articleBody">That was not the case for Barbara Dohler, 53, of Shrewsbury.<br />
At least not until Tuesday morning, when she received a kidney transplant <br />
from a lifelong friend, Bettyann Russell, 52, of Baltimore. Russell had jumped <br />
at the opportunity to be tested as a possible donor when she learned that <br />
another donor had backed out.<br />
Dohler's kidney had grown to about 5 pounds before being removed at Pinnacle <br />
Health-Harrisburg Hospital. Dohler had Polycystic Kidney Disease, a genetic <br />
disorder characterized by multiple cysts on the kidneys.<br />
It affects about 500,000 people in the United States and has been found in at <br />
least four generations of her family on her father's side.<br />
Her grandfather, both uncles, her father and her sister have also battled the <br />
disease.<br />
Dohler said she was diagnosed at age 38.<br />
"I wasn't surprised," she said. "I knew I had it when I started to get kidney <br />
stones."<br />
Tuesday was not only memorable because of her surgery, but it also marked the <br />
seventh anniversary of her father's death, which was brought on from to <br />
complications related to the disease.<br />
"We watched her father being taken to dialysis three times a week," said <br />
Russell's husband, Gary.<br />
Throughout all of this, Dohler had kept in contact with Russell, who she met <br />
in high school.<br />
"We became fast friends," Dohler said.<br />
Russell served as one of the bridesmaids at her wedding.<br />
As they began their new lives, they kept in close contact through letters and <br />
phone calls.<br />
"This past December (Bettyann) inquired about (my disease) over the phone," <br />
Dohler said. "When I told her the time was getting close when I'd need a <br />
transplant -- and the original donor fell through -- she asked right away, 'How <br />
do I get tested?'"<br />
From there, Russell was tested and found that her kidneys were compatible.<br />
Dohler considers herself lucky. Of the 86,000 men and women on the waiting <br />
list to receive a kidney, statistics show that fewer than one in seven will <br />
receive an organ donation, according to the Living Kidney Donor Network.<br />
"I'm extremely thankful that Bettyann has been doing this with me. I'm very <br />
blessed," Dohler said.<br />
The two women and their families arrived at the hospital for surgery at 5:30 <br />
a.m. Tuesday. Both were in good condition following the procedure. If there are <br />
no complications, Russell is expected to be released Thursday and Dohler on <br />
Saturday or Sunday.<br />
<br />
<h3>Learn more</h3><h3>To learn more about kidney health and organ donation, go to www.kidney.org.</h3><br style="clear: both;" /></div></td></tr>
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</tbody></table>Jenhttp://www.blogger.com/profile/07854458341391943756noreply@blogger.com2tag:blogger.com,1999:blog-3568704641830136846.post-57505933408588775552011-03-28T18:22:00.000-04:002011-03-28T18:22:49.679-04:00My Mom's a Local Newspaper All-Star!!!Front page...right under the "Japan" main headline! <br />
<br />
<h1 class="articleTitle" id="articleTitle">Kidney transplant another bond between <br />
friends</h1><div class="articleTitle"><!--subtitle--><!--byline-->LAUREN WHETZEL <i>The York Dispatch</i></div><!--date-->Posted: 03/28/2011 12:40:02 PM EDT<br />
<!--secondary date--><br />
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<div class="articleImageCaption" style="width: 100%;">
Barbara Dohler, 53, right, of
Shrewsbury, will be receiving a new kidney from Bettyann Russell, 52, of
Baltimore. (Submitted Photo)</div></div></div><span fd-id="default" fd-type="end"></span></div><script language="JavaScript">
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<div class="articleBody" id="articleBody">There's a reason why, as a young teenager, Barbara Dohler befriended "the new <br />
girl" in her neighborhood.<br />
<br />
Bettyann Russell still remembers back to how nervous she was prior to <br />
entering a new high school as a freshman in 1973. But luckily, Russell said, <br />
Dohler took her under her wing and helped ease her worries of meeting people and <br />
adapting to life in a new town.<br />
<br />
The pair, now in their early 50s, remained close friends over their adult <br />
years through lengthy Christmas letters each year and occasional phone <br />
calls.<br />
<br />
And a casual call between the friends this past Christmas led to <br />
life-changing decisions for both women, said Dohler of Shrewsbury.<br />
<br />
Dohler has battled polycystic kidney disease (PKD) since she was 38 years <br />
old. Each night, the 53-year-old woman is required to undergo a nine-hour <br />
dialysis treatment in her home. She said she's seen first-hand how the disease <br />
affects one's body, as her father and grandmother both died of complications <br />
from the kidney disease.<br />
<br />
"I knew my functioning would decline to the point where I'd need dialysis. <br />
But I really didn't think about it until about five years ago when I knew my <br />
kidney functioning was declining," said Dohler.<br />
<br />
About a year ago, Dohler said her doctor suggested she start seeking <br />
potential kidney donors since her kidneys were failing and she was fatigued each <br />
day.<br />
<br />
Shortly before the holidays, Russell asked Dohler about her health during a phone conversation.<br />
While Dohler would typically reply that she was doing fine, she admitted that <br />
time was running out before needing to begin dialysis because her first <br />
potential donor was unable to follow through with testing for compatibility, <br />
said Russell of Baltimore.<br />
<br />
That's when, Russell said, she suggested she be tested to see if she could be <br />
a kidney donor for her friend.<br />
<br />
<b>'So blessed':</b> "I didn't want Barbara to miss out on the joy that I <br />
have with my grandsons," said Russell, noting she needs a lot of energy to keep <br />
up with the youngsters. "I've been so blessed, donating my kidney is my way to <br />
thank God for the blessings in my life."<br />
<br />
Russell said her entire family supported her decision to donate a kidney to <br />
her childhood friend.<br />
<br />
"There's a reason why Barbara befriended me and helped me through freshman <br />
year of high school. That 1973 meeting was purposeful, she never asked me for a <br />
kidney, I just felt it was my call to help her," said Russell, of Baltimore.<br />
<br />
January's preliminary test proved the pair's kidneys were compatible, she <br />
said. January and February were spent undergoing extensive medical physicals to <br />
be sure that she was physically well enough to donate her kidney to Dohler.<br />
<br />
<b>Surgery Tuesday:</b> After a few short months of preparing for the <br />
transplant, the two will undergo the surgery Tuesday at Pinnacle Health's <br />
Harrisburg Hospital.<br />
<br />
Dohler, who enjoys traveling with her husband, Gary, of 33 years, said she <br />
looks forward to being able to live an energetic life free of dialysis <br />
machine.<br />
<br />
"I feel very blessed and thankful. It's overwhelming that someone is willing <br />
to do this for me," said Dohler.<br />
<br />
As for now, Dohler said she's excited for the surgery and looks forward to <br />
not having to worry about how her health will limit her interaction with her <br />
grandchildren.<br />
<br />
</div>Jenhttp://www.blogger.com/profile/07854458341391943756noreply@blogger.com1tag:blogger.com,1999:blog-3568704641830136846.post-53696085967070748732011-03-25T15:29:00.002-04:002011-03-25T15:30:37.231-04:00Awareness of a Different KindNormally my posts revolve around Cameran and what she is doing, or incorporate advocacy for Down syndrome. <br />
<br />
This post is different. This post advocates, but for another type of need. <br />
<br />
Living Organ Donation.<br />
<br />
The following is a letter I drafted and then sent to various media junkets in the area. Within a day, two have responded, one being a confirmation of a future news story. I hope that people will see what a selfless gift that Bettyann is providing to my mom, and that no possible words can convey how thankful and grateful we are to her and her family. I cannot wait to see how the final newspaper story turns out!<br />
<br />
<br />
<br />
<br />
<span style="color: blue;">To Whom It May Concern,</span><br />
<span style="color: blue;"><br />
</span><br />
<span style="color: blue;"><br />
</span><br />
<span style="color: blue;">At a time when news is bleak, patrons cling to the rays of hope that come from uplifting human interest stories and other such pieces. </span><br />
<span style="color: blue;"><br />
</span><br />
<span style="color: blue;">Next Tuesday, March 29, 2011, a voluntary kidney transplant will take place at Pinnacle Health’s Harrisburg Hospital. My mother Barbara Dohler, 53, of Shrewsbury will be receiving a new kidney from Bettyann Russell, 52, of Baltimore. </span><br />
<span style="color: blue;"><br />
</span><br />
<span style="color: blue;">Barbara’s family history of Polycystic Kidney Disease (PKD) is so dominant that it has not missed a generation in over four. Both of her uncles have battled this disease to the point of dialysis and transplantation, and her sister also is afflicted with PKD as well. Barbara’s father had an emergency double kidney removal in 1997 and lived the rest of his life on dialysis until his death on March 29, 2004.</span><br />
<span style="color: blue;"><br />
</span><br />
<span style="color: blue;">What makes this a remarkable human interest story is two-fold. One aspect is the general raising of awareness about the importance of kidney donation, or any donation, whether voluntary or post-mortem. A second noteworthy aspect to this story is the manner in which Bettyann came to be Barbara’s life-saving donor.</span><br />
<span style="color: blue;"><br />
</span><br />
<span style="color: blue;">As teenagers Barbara befriended Bettyann, the new kid on the block. Their friendship blossomed over the years, Bettyann serving as a bridesmaid at Barbara’s wedding. As they each began new lives with their respective families, they stayed in contact. Years turned into decades and the two continued to correspond via lengthy Christmas card letters. </span><br />
<span style="color: blue;"><br />
</span><br />
<span style="color: blue;">During recent years Bettyann would inquire about Barbara’s kidney functioning. Barbara’s kidney functioning has technically been considered “kidney failure” for well over a year, but not wanting to begin dialysis Barbara remained resilient to her fatigue and other bodily symptoms that accompany PKD. </span><br />
<span style="color: blue;"><br />
</span><br />
<span style="color: blue;">At Christmas of 2010 Bettyann asked the same question of Barbara. This time Barbara admitted that time was running out before needing to begin dialysis and shared that her first potential donor was unable to follow through with testing for compatibility. Bettyann responded by stating that she would like to be tested to see if she could be a kidney donor. She wanted Barbara to regain energy and be able to spend time with her two year old grandchild as well as be able to help her daughter with the arrival of a second grandchild in September. After the holidays she would speak to her husband and children to be sure she had their blessing. She did. January’s preliminary test proved the two were compatible and the rest of January and February was spent undergoing extensive medical physicals to be sure that Bettyann was physically well enough to donate. </span><br />
<span style="color: blue;"><br />
</span><br />
<span style="color: blue;">This coming Tuesday, the two will arrive at Harrisburg Hospital and begin their journey to surgery. Both patients. One recipient. One selfless donor. </span><br />
<span style="color: blue;"><br />
</span><br />
<span style="color: blue;">March 29th. The circle of renewed life for Barbara on the 7th anniversary of her father’s death.</span><br />
<span style="color: blue;"><br />
</span><br />
<span style="color: blue;"><br />
</span><br />
<span style="color: blue;"><br />
</span><br />
<span style="color: blue;">Thank you for your consideration in using this as a feature.</span><br />
<span style="color: blue;"><br />
</span><br />
<span style="color: blue;"><br />
</span><br />
<span style="color: blue;"><br />
</span><br />
<span style="color: blue;">Respectfully submitted,</span><br />
<span style="color: blue;"><br />
</span><br />
<span style="color: blue;"><br />
</span><br />
<span style="color: blue;">Jennifer </span><br />
<span style="color: blue;"><br />
</span><br />
<span style="color: blue;"><br />
</span><br />
<br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhamWwMepRgfbJVnevAX8aItgXA0o7kVEyCAr7igaZt9Bhywu9x1BknXepfuGJKIOYi2SJJlGcEuVJ2jwP3llVSEuVuIWnMj8z-dD_9Ug106dDsr2hT9ZhKBzUrfLSewnZkN_USLwLB5B4/s1600/Bettyann_Barb_PreOp.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhamWwMepRgfbJVnevAX8aItgXA0o7kVEyCAr7igaZt9Bhywu9x1BknXepfuGJKIOYi2SJJlGcEuVJ2jwP3llVSEuVuIWnMj8z-dD_9Ug106dDsr2hT9ZhKBzUrfLSewnZkN_USLwLB5B4/s320/Bettyann_Barb_PreOp.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Bettyann and Barbara</td></tr>
</tbody></table><br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj5sV4JTeizXhLyNhi63PeushOjLBotlaGGtA19oYrz2rLKF_NzDwmGaqy1s9c9HRONgoixVjkVpkAuiWV9HTinmHi8LLTcRenV57qk4R2e67yBIApCz4d7LPrWF09kNAQ7ZpsNkQQRZ54/s1600/Bettyann_Barb_PreOp2.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj5sV4JTeizXhLyNhi63PeushOjLBotlaGGtA19oYrz2rLKF_NzDwmGaqy1s9c9HRONgoixVjkVpkAuiWV9HTinmHi8LLTcRenV57qk4R2e67yBIApCz4d7LPrWF09kNAQ7ZpsNkQQRZ54/s320/Bettyann_Barb_PreOp2.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Donor and Recipient</td></tr>
</tbody></table><br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhGQ5tda6rMvoyH78zyjg4pVLwmekAFBI_pblN8E8UJW6IC8XOGUo5EgFG88SxCWRUtmYfvXgGuCsXtcE8AMxRnflvqHgakQ85lffdHtaMVVtFP8up-PJWkyEKZ6Si8RxgAh3MY2MCFQiM/s1600/Mom_Cami.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhGQ5tda6rMvoyH78zyjg4pVLwmekAFBI_pblN8E8UJW6IC8XOGUo5EgFG88SxCWRUtmYfvXgGuCsXtcE8AMxRnflvqHgakQ85lffdHtaMVVtFP8up-PJWkyEKZ6Si8RxgAh3MY2MCFQiM/s320/Mom_Cami.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Enjoying Cameran's 2nd birthday</td></tr>
</tbody></table><br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiSzhqeocrIO-hI2h34sAyefwK2sv2WbrywaHoVlQQJojEq9ghYsNXoJxRfSJt7EfcZK0M_4w9SN04I8l75KvjdoxrLPZ0nFjXyk5OKe7CEFqyfsfbnHZIhrVegJK6V73EykDtJ8umiWGc/s1600/Mom_Cami2.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiSzhqeocrIO-hI2h34sAyefwK2sv2WbrywaHoVlQQJojEq9ghYsNXoJxRfSJt7EfcZK0M_4w9SN04I8l75KvjdoxrLPZ0nFjXyk5OKe7CEFqyfsfbnHZIhrVegJK6V73EykDtJ8umiWGc/s320/Mom_Cami2.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Babysteps (Don't mind the husband in the background--and what it is he is doing with his tongue and cheek, I have not a clue!)<br />
<br />
<br />
</td></tr>
</tbody></table><br />
Have a great weekend!Jenhttp://www.blogger.com/profile/07854458341391943756noreply@blogger.com3tag:blogger.com,1999:blog-3568704641830136846.post-38878388864347245422011-03-21T20:43:00.000-04:002011-03-21T20:43:53.387-04:00Cameran Is Two!!Happy Birthday/Down Syndrome Awareness Day Cameran Leah!<br />
<br />
Turning two is a big deal. You were smiley and cheery all day. You ate cupcakes at daycare with your friends and teachers, and then you came home and played on the slide. You opened lots of presents and you ate another cupcake AND a cookie cake slice with Mommy, Daddy, Pappy, and Nanny by your side. Aunt Melody also stopped by to give you a birthday squeeze and a present. You wanted NOTHING to do with opening presents. You even crawled away. Does this mean Mommy doesn't have to wrap them next time?? After proudly using your hands to dig into your cupcake, you used the icing as hair gel. Your birthday ended with bathtime, and now you are passed out on the sofa with Daddy. <br />
<br />
<br />
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<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjYUNXbDp8qJ6QTyClps2mGeGwK8mZel9JpiaIePXfTa0-6R0Klfr_AUbDDfED0X8cl6URFj9X9hptniRWq7g7r8WjS_6ErexoRz73yHoKhWiantubm5wr-Z6LsDFz4ZERUw1K18GoLLpw/s1600/bday22.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjYUNXbDp8qJ6QTyClps2mGeGwK8mZel9JpiaIePXfTa0-6R0Klfr_AUbDDfED0X8cl6URFj9X9hptniRWq7g7r8WjS_6ErexoRz73yHoKhWiantubm5wr-Z6LsDFz4ZERUw1K18GoLLpw/s320/bday22.JPG" width="240" /></a></div><br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiybRGhzjsxjzwqJZvC0HSG1zHR-C7RQ2-hBiREz3G3x5ZZg_uN-BevqjpUZ944te0nNsCOStNwHyv5I9jXjd7VhLB4zMIZMWU6UHBX9g8Kub_4OsZKKE91P9jf9RTl3nsOFmoCkmBuK-Q/s1600/bday23.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="239" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiybRGhzjsxjzwqJZvC0HSG1zHR-C7RQ2-hBiREz3G3x5ZZg_uN-BevqjpUZ944te0nNsCOStNwHyv5I9jXjd7VhLB4zMIZMWU6UHBX9g8Kub_4OsZKKE91P9jf9RTl3nsOFmoCkmBuK-Q/s320/bday23.JPG" width="320" /></a></div>It really is special how God gave us you on 3/21/09. We had no idea their was a World-Anything Day, let alone World Down Syndrome Awareness Day until you were born. Because of you we are blessed to advocate for other people with intellectual disabilities. Because of you I am more tolerant of others. Because of you I take more time with my students who have learning disabilities. Because of you I am educating others to stop using the word "retard(ed)" to mean something silly, annoying, or mindless. Without you, I don't know that these things would have occured. Because of you I am a better person.<br />
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I love you Nutter B.Jenhttp://www.blogger.com/profile/07854458341391943756noreply@blogger.com3tag:blogger.com,1999:blog-3568704641830136846.post-17839590732568965222011-03-20T16:57:00.000-04:002011-03-20T16:57:15.221-04:00Birthday Week<div style="text-align: center;">Here's a little prequel to Cameran's 2nd birthday....</div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEir6wEhSklu3Wy-SlATaj-wfWfOf9DxnyvqXKueTKx9BpV4oEFtZq8qAAxY74QTiPcnGxN40NjfojjyT_y2x1qJ5rCiK3J7H-mUGc1XbXJhc8yzABAVlGsRp6MSDzCaIKbddj2AFzwBuNs/s1600/BirthdayCollage1.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEir6wEhSklu3Wy-SlATaj-wfWfOf9DxnyvqXKueTKx9BpV4oEFtZq8qAAxY74QTiPcnGxN40NjfojjyT_y2x1qJ5rCiK3J7H-mUGc1XbXJhc8yzABAVlGsRp6MSDzCaIKbddj2AFzwBuNs/s320/BirthdayCollage1.jpg" width="320" /></a></div><br />
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</div><div class="separator" style="clear: both; text-align: center;">Cameran Leah, today was spent wrapping and baking all in celebration of your Birth Day. Tomorrow marks the second day of your life. Your Daddy and I are forever changed for the better because you are here. We love you NutterButter.</div><div style="text-align: center;"><br />
</div>Jenhttp://www.blogger.com/profile/07854458341391943756noreply@blogger.com0